rare disease
9 feeds in the directory cover this.
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TSC Now
a podcast from the TSC Alliance®
Podcasts Archives — KHTS Radio
Santa Clarita Radio - Santa Clarita News
Cure GM1
RARECast
RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.
Two Disabled Dudes
The 2DD podcast is about setting sights beyond the challenges in your life and dreaming big, making a plan, and then executing like mad. You are guaranteed an emotional rollercoaster, and practical thoughts that you can apply to your life with this podcast. Hosts Sean and Kyle are both affected by a rare disease called Friedreich’s ataxia (FA). FA affects their balance and coordination, significantly limiting their physical abilities. However both dudes have completed several long distance bike…
P4A Let's Talk Rare: The Life Science Podcast
Welcome to P4A Let’s Talk Rare, a monthly podcast highlighting the most important developments in the world of rare diseases orphan drug, cell and gene therapy, hosted by Georgie Rack and Owen Bryant of Partners For Access. To find out more about Partners For Access and our commitment to sustainable orphan drug access for patients with high unmet need, visit partners4access.com
Live Life Rare
Stories and resources to help you discover and pursue your rare life
Rare Disease Girl
I want to help you save your own life. RDG is a digital atlas for navigating our inevitable challenges: personal memoir, health systems, mental wellness, patient-empowerment, life-saving tips, and motherhood.
Riaan's Newsletter
Sign up for our newsletter and learn more about our journey to find a cure for our son Riaan's rare, fatal, and devastating neurodegenerative genetic disease, Cockayne Syndrome. Visit our foundation page for Riaan Research Initiative at riaanresearch.org.
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