rare disease

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1. 1▶Curing Sickle Cell Before Life BeginsRARECast30:56
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2. 2▶Spotting Neuromuscular Red FlagsRARECast37:08
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3. 3▶Expanding into a Global Rare Disease Player through Deal-Driven InnovationRARECast51:57
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4. 4▶When Geography, Cost, and Policy Become as Life-Limiting as a DiseaseRARECast36:20
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5. 5▶A One-Time Cell Therapy to Reset the Immune System in Autoimmune DiseasesRARECast36:49
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6. 6▶Building the Infrastructure for Made‑to‑Order Gene TherapiesRARECast35:49
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7. 7▶Rewiring the Rare Disease Diagnostic OdysseyRARECast38:11
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8. 8▶Emerging from a Life in the ShadowsRARECast36:36
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9. 9▶Fitting Big Genes into Small VectorsRARECast33:24
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10. 10▶Targeting Iron Dysregulation in the Neurodegenerative Condition MSARARECast33:09
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11. 11▶300 - Season Finale: 300 Episodes Rooted in ConnectionTwo Disabled Dudes1:03:36Notes
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12. 12▶299 - Building Hope From Broken SystemsTwo Disabled Dudes42:37Notes
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13. 13▶298 - Invisible Illness, Unbreakable Bond: Part 2Two Disabled Dudes31:47Notes
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14. 14▶Solving Patient Matching in Rare Disease TrialsP4A Let's Talk Rare: The Life Science Podcast33:36Notes
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15. 15▶297 - Invisible Illness, Unbreakable Bond: Part 1Two Disabled Dudes40:21Notes
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16. 16▶296 - Support That Meets You Where You AreTwo Disabled Dudes50:09Notes
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17. 17▶295 - Pushing Harder Isn’t Always the AnswerTwo Disabled Dudes35:52Notes
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18. 18▶294 - Finding Your People Without Losing YourselfTwo Disabled Dudes44:25Notes
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19. 19▶293 - Rare Disease Day: This is What Advocacy Looks LikeTwo Disabled Dudes1:16:55Notes
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20. 20▶292 - The Hidden System Behind Rare Disease TreatmentsTwo Disabled Dudes45:54Notes
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21. 21▶291 - Taking on the World’s Longest StairwayTwo Disabled Dudes34:31Notes
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22. 22▶Rare Disease Day Special: The stats and stories you need to hear.P4A Let's Talk Rare: The Life Science Podcast32:20Notes
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23. 23▶2026 Trends: A Year Of Change & OpportunityP4A Let's Talk Rare: The Life Science Podcast17:08Notes
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24. 24▶Episode 52: Prolonged Seizures (Sponsored by UCB)TSC Now22:42Notes
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25. 25▶Going To Glasgow: ISPOR 2025P4A Let's Talk Rare: The Life Science Podcast22:15Notes
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26. 26▶Episode 51: Drug-Resistant Epilepsy (Sponsored by LivaNova)TSC Now22:20Notes
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27. 27▶Conversations Beyond the ClinicP4A Let's Talk Rare: The Life Science Podcast26:18Notes
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28. 28▶Voices Uncovered: Understanding Mental Health in Rare Diseases using Social ListeningP4A Let's Talk Rare: The Life Science Podcast30:05Notes
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29. 29▶Stronger Together: Collaborating for Better Patient Information with Catherine Richards GoliniP4A Let's Talk Rare: The Life Science Podcast33:16Notes
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30. 30▶OST-HER2 and the Fight Against Osteosarcoma: A New Hope After 40 YearsP4A Let's Talk Rare: The Life Science Podcast27:44Notes
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31. 31▶AI for Rare Disease: From Discovery to Trials, Smarter and FasterP4A Let's Talk Rare: The Life Science Podcast37:48Notes
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32. 32▶Improving Alignment In Drug DevelopmentP4A Let's Talk Rare: The Life Science Podcast36:35Notes
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33. 33▶Episode 50: What happens when a clinical trial fails?TSC Now30:40Notes
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34. 34▶Navigating Housing Options for Dependent Adults with TSC (sponsored by Nobelpharma America)TSC Now35:00Notes
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35. 35▶Drug-Resistant and Undertreated Epilepsy (sponsored by LivaNova)TSC Now16:04Notes
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36. 36▶50th Anniversary Spotlight – Shonnie JohnsonTSC Now38:26Notes
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37. 37▶Episode 49: Community Spotlight – Gloria TriebenbachTSC Now33:46Notes
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38. 38▶Episode 48: Community Spotlight – Kristen MooreTSC Now28:04Notes
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39. 39▶Episode 47: Closing the Epilepsy Treatment Gap WorldwideTSC Now31:49Notes
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40. 40▶Episode 46: Understanding drug resistant epilepsy and treatment optionsTSC Now12:49Notes
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