Milo’s Story
Milo’s Story Milo passed away from infantile GM1 (Type 1) on July 20, 2026. Below,... The post Milo’s Story appeared first on Cure GM1 .
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Ayesha’s Story
Ayesha’s Story Ayesha is the only child of a family who has already endured heartbreaking... The post Ayesha’s Story appeared first on Cure GM1 .
Ravi’s Story
Ravi’s Story Ravi passed away from infantile GM1 (Type 1) on March 4, 2026. Below,... The post Ravi’s Story appeared first on Cure GM1 .
August 2026 Cure GM1 Catalyst
Hello! We have some incredible news for the GM1 community. In July, members of the Cure GM1 team met with representatives of the U.S. Food & Drug Administration (FDA) to discuss the future of Enzyme Replacement Therapy (ERT) as a treatment for those living with GM1 gangliosidosis. The post August 2026 Cure GM1 Catalyst appeared first on Cure GM1 .
GM1 Gangliosidosis vs. GM2 Gangliosidosis (Tay-Sachs / Sandhoff): Understanding the Differences
From First Clinical Descriptions to Modern Therapeutics, a plain-language guide for families and caregivers Why... The post GM1 Gangliosidosis vs. GM2 Gangliosidosis (Tay-Sachs / Sandhoff): Understanding the Differences appeared first on Cure GM1 .
How to Help Fund Research and Support the Cure GM1 Foundation
GM1 gangliosidosis is a rare, inherited disease that robs children of their abilities, and their... The post How to Help Fund Research and Support the Cure GM1 Foundation appeared first on Cure GM1 .
Cure GM1 Held an INTERACT Meeting About ERT with The FDA
Cure GM1 Moves ERT One Step Closer to A Trial We have some incredible news... The post Cure GM1 Held an INTERACT Meeting About ERT with The FDA appeared first on Cure GM1 .
GM1 Gangliosidosis: A History
GM1 Gangliosidosis: A History From First Clinical Descriptions to Modern Therapeutics Last updated August 2026... The post GM1 Gangliosidosis: A History appeared first on Cure GM1 .
July 2026 Cure GM1 Catalyst
Summer has a way of slowing things down, and we hope you are finding joy in relaxed routines, longer days, and more time with your precious families. I’m pleased to introduce our coordinator for this year’s virtual International Cure GM1 Community Conference, Cleopatra Frazier. She’ll be here to answer all of your questions and help us create an impactful and meaningful experience for all of you…
June 2026 Cure GM1 Catalyst
Happy June! This is our favorite month because it means International GM1 Gangliosidosis Awareness Day 2026 is almost here. Our June 2026 Cure GM1 Catalyst newsletter covers GM1 Awareness Day results, community stories, the latest research, and ways to get involved. The post June 2026 Cure GM1 Catalyst appeared first on Cure GM1 .