5 Things Worth The Money - The Patient Edition
and I'll throw in some bonus ones too!
Rare Disease Girl
I want to help you save your own life. RDG is a digital atlas for navigating our inevitable challenges: personal memoir, health systems, mental wellness, patient-empowerment, life-saving tips, and motherhood.
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Latest posts
3x3 Thursday - On Uncertainty Versus Possibility
3 minute read - A thought. A quote. A question.
Resilience Fatigue Is Real.
and 12 ways I cope with it.
3x3 Thursday - On Turning Points
3 minute read - A thought. A quote. A question.
Crickets on the aHUS Name Change Front... until now
Patients & caregivers get an opportunity to share their voice
The Angel POV
Surviving death, changes how I see life...
Going to The Pitt
Life sure will take you on a journey if you let it.
Kid Adventures + Meeting The Cast of the Pitt & Jane Fonda
and on being insanely busy but not missing the good stuff...
Dear Insurance Industry, Don’t Pee On My Leg And Tell Me It’s Raining.
Ending the "profits over people"debate once and for all
The Patient Mental Health Guide
A digital atlas to help patients when life gets hard