Last edited:
This would be my go to for Netherlands. mecvs.nl has actually been horrible for patients so I'd recommend anyone to steer well clear of them. They're the ones backing the ME Lines consortium headed by Judith Rosmalen and they have been supporting the BPS approach over the decades.
Thanks Solstice, ME/CVS Vereniging added.
This was a good idea @Hutan and thank you for making this list! There's another good organisation in Norway for parents with children with ME called ME-foreldrene (The ME parents): https://www.me-foreldrene.no/ if you want to add it to the list.
mango
Senior Member (Voting Rights)
Finland
Suomen lääketieteellinen ME/CFS-yhdistys ry
Medicinska föreningen för ME/CFS i Finland
(Finnish Medical ME/CFS Association)
https://slme.fi/
Are we also adding Long Covid groups? Each of the Scandinavian countries have variants of along the lines of "Norwegian Covid Association"
Are we also adding Long Covid groups? Each of the Scandinavian countries have variants of along the lines of "Norwegian Covid Association"
I think we could. It's probably better to have a more inclusive list than a less inclusive one.
Are we also adding Long Covid groups? Each of the Scandinavian countries have variants of along the lines of "Norwegian Covid Association"
yes, I think so too.
I've added the Scandinavian ones to the list
ME Advocates Ireland added to the list
They are claiming a worldwide prevalence of 30 million which seems off to me. 80 million would be 1% so 30 million is nearly 0.4%.
obeat
Senior Member (Voting Rights)
Comments
Nothing yet. Say the first thing.
Sign in to join the conversation.