A forum where Science and the ME/CFS Community Meet
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I thought it would be useful to have a list of all the active international and national level ME/CFS charities and research foundations not specific to one research institution around the world. We can add to it as we find them. Please post below with organisations and a website and contact email if they have them. For those organisations that we have a news thread for, I'll link to the relevant…
Modafinil Ameliorated Fibromyalgia Syndrome in Rats by Modulating Mast Cells and Microglia Activation Through Dopamine/Substance P/MRGPRX/Histamine and PI3K/p-Akt/NF-κB Signaling Pathways Spoiler: Authors Kamal, Mennat-Allah M.; Essam, Reham M.; Abdelkader, Noha F.; Zaki, Hala F. Abstract Fibromyalgia syndrome (FMS) is characterized by prolonged, widespread musculoskeletal pain accompanied by…
This thread is intended to get an overview of ME/CFS news in France.
A thread for general news, events, articles etc from Austria and Switzerland.
The following has come to my attention (thanks @Philipp ): http://dip21.bundestag.de/dip21/btd/19/126/1912632.pdf It is a reply to a list of questions which a few German MPs put to the government: reply of the Federal Government to the Minor Question by Maria Klein-Schmeink, Dr Kirsten Kappert-Gonther, Kordula Schulz-Asche, other Members and the Group of the Alliance 90/the Greens Click to…
Free fulltext: https://ojs.lib.uwo.ca/index.php/uwomj/article/download/25031/19393 UWOMJ 2026 94(1) Ahmed & Barkhouse (2026) 1 of 11 Editorial Post-Infectious Encephalitis Through the Lens of Long COVID Minhal Ahmed1*, Kate Barkhouse1 1 Schulich School of Medicine & Dentistry, Western University, London, Ontario, Canada * Correspondence: mahmed12028@meds.uwo.ca Abstract: Post COVID 19 condition…
https://thesicktimes.org/ We report on the common, life-changing disease following Covid-19 infection that affects over 65 million people worldwide and can be fatal. Our coverage spans related infection-associated chronic conditions such as myalgic encephalomyelitis, dysautonomia, mast cell activation syndrome, and more. Unlike many outlets, we continue to report on the impact of the ongoing…
Edit: another one Did the BBC ever cover the Millions Missing protests? Not mad about this coverage, but the only difference here is perception, this is essentially the same issue.
Patient-reported harm from NHS treatment or care, or the lack of access to care: a cross-sectional survey of general population prevalence, impact and responses Spoiler: Authors Crocker, Helen; Cromwell, David A; Modha, Shivali; Gray, Alastair McIntosh; Graham, Chris; Thana, Lavanya; Fitzpatrick, Raymond; Vincent, Charles; Hogan, Helen; Peters, Michele Abstract Objectives The aim of this article…
An Open Letter to British Association for Clinicians in ME/CFS in Response to the Document ‘Guide to Therapy’, 2025 Jonathan CW Edwards, Professor in Connective Tissue Medicine* Dr Michelle Bull, Chartered Physiotherapist Joan Crawford, Chartered Counselling Psychologist *Correspondence to JO.EDWARDS@UCL.AC.UK Introduction NICE Guideline NG206 (NICE, 2021) proposed a major change in management for…
Now published: see here Abstract: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a common and debilitating chronic illness of unknown aetiology. Chronic infection and autoimmune responses have been proposed as two mechanisms that potentially underlie the pathogenesis of ME/CFS. To explore these disease hypotheses, we characterised the antigen-specific receptors of B cells using…
Background Persistent physical symptoms are among the most common and challenging presentations in general practice, whether investigations are normal or reveal pathology insufficient to explain their severity. Patients and clinicians alike often experience these presentations as a dead end. Traditional biomedical models assume that symptoms passively reflect structural pathology, and that normal…
Circulating MicroRNA ratios as diagnostic biomarkers for long COVID with an independent validation cohort Spoiler: Authors Han, Emilie; Lukovic, Dominika; Müller-Zlabinger, Katrin; Hasimbegovic, Ena; Schefberger, Katharina; Kastner, Nina; Spannbauer, Andreas; Riesenhuber, Martin; Nitsche, Christian; Zelniker, Thomas A.; Gyöngyösi, Mariann; Hamzaraj, Kevin Abstract Background Long COVID is a…
Cardiovascular, Renal, and Pulmonary Risks of Long COVID: A Retrospective Cohort Study Stratified by Age and Sex Spoiler: Authors Pradeep, Akash; Ramalho, Izola; Carvour, Martha L.; Sivamurugan, Srija M.; Singh, Upinder; Comellas, Alejandro P.; Dayal, Sanjana Abstract Background A substantial proportion of patients with acute COVID‐19 develop postacute sequelae of SARS‐CoV‐2 infection (Long…
Loneliness, social isolation, and accumulation of chronic conditions: A nationwide longitudinal study in Japan Spoiler: Authors Ito, Hiroshi; Okaya, Shuichi; Watanabe, Tatsuya; Zheng, Ying-Fang; Shimojo, Nobutake; Kawano, Satoru; Tabuchi, Takahiro Abstract Background Loneliness and social isolation are related but distinct dimensions of social disconnection, but their longitudinal associations…
This thread brings together posts from three previous threads on the topic of Aripirazole I heard a while back that Stanford is using a low dose of the anti-psychotic Abilify as a neuro antiinflammatory and finding some success. Are any of you here using Abilify, in either low dose or standard dose? How do you find it affects your ME, if at all? I'm thinking about asking my doctor about it when…
More vulnerable people could die because of a shortage of dietitians at NHS psychiatric hospitals , a coroner has warned. Neeshat Dalal, 69, was admitted to the Heathfield ward at the NHS Eastbourne District General Hospital on November 30, 2022, after being sectioned under the Mental Health Act for severe depression. She had struggled to eat and drink for around two months prior to her admission,…
Copied post Watching at the moment but I think it should be an interesting watch. Professor Warren Tate spoke at the ANZMES Annual General Meeting, which was held on 11th of November 2017. Professor Tate updated everyone on his current research that he is undertaking into ME/CFS which show some very promising results linking his research very closely with other research that is being carried out…
Is there anybody else apart from the Workwell team, Alain Moreau, and Lenny Jason who have attempted, or who are attempting, to look specifically at PEM? I appreciate those mentioned are using widely different approaches, and that there could be arguments as to whether they are actually looking at PEM; I'm just trying to find out if there is anybody else out there.
Association between psychological wellbeing and the COVID-19-related outcomes in Europeans aged ≥ 50 years old: The SHARE study Spoiler: Authors Gao, Yumeng; Wu, Nannan; Shen, Suwen; Zheng, Xiaowei; Chen, Yujun; Shi, Chao Abstract The aim of the present study was to prospectively investigate the associations between psychological wellbeing and COVID-19 outcomes (vaccination, infection, long COVID)…