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oh these fragile bodies and lives

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Lead NYMag Story!! Please share.

Read it here. The PANS article that came out today in New York Magazine is the hardest I have ever worked and the proudest I have ever been about writing.

5 recommendations

for your summer enjoyment

Answering Brenda's question

A few times a month I get emails from people asking for advice about writing, parenting, adjusting to disability, and more.

Open Calendar and Booked Days

some updates

I do not like it but I am doing it anyway.

First, Thank you for your kind messages and donations after my last post.

Asking for your help

Some news and a request

Dr. Mara Gordon and Jessica Slice on Mutual Trust Between Doctors and Patients

It was an absolute delight to spend time with Mara Gordon yesterday, trying to solve medical care (ha!) She is a family physician and NPR medical columnist who has become one of my favorite thinkers about the culture of medicine.

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Save the Date - April 14 noon ET

Why is it so hard to get a diagnosis?

Two walks and a long winter

This Thursday will be the 6 month anniversary of the day that K became profoundly ill and our lives changed.

A store of fire and rapture and broken glasses

I was partway through an essay that is taking a lot of time, so in the meantime, a story: