Stable Is Not the Same as Fine
We live scan to scan. If you’ve walked this road, you know exactly what that means.
Brainstorm Health
Brainstorm Health is where lived experience meets understanding. We explore the real questions, patterns, and moments that emerge for patients and caregivers navigating serious illness—and what they reveal about how support can be better designed.
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Latest episodes
The Quiet Disappearance of Everyday Affection
There is a loss that almost never gets talked about in glioblastoma.
The Relationship Complexity No One Talks About
Glioblastoma does not arrive into perfect relationships.
Glioblastoma Doesn’t Need One Better Drug. It Needs a Better Strategy.
Every few weeks there’s another headline announcing a potential breakthrough for glioblastoma.
The Avastin Decision Is Rarely About Avastin
In glioblastoma, treatment decisions are often described as if they happen in a clean sequence.
The Rebound
There is a moment in serious illness that can fool almost anyone.
What This GBM Trial Reveals About the Missing Layer in Study Design
A Phase I glioblastoma trial can look complete on paper.
What GBM Families Can Teach Pharma
GBM drug development is hard because the biology is hard.
For Better or Worse, and After #1 - Our Stories
Before there were conversations about grief, there were marriages.
The Caregiver Is Infrastructure
GBM care depends on people the system does not fully count.
What 4,028 GBM Conversations Reveal About the Real Patient Journey
The official GBM journey has a shape.
GBM Awareness Day Is About More Than Awareness
Every July, Glioblastoma Awareness Day asks people to look toward a disease most families never expect to learn about.
Surviving Means Saying Goodbye
When Jason recently asked me if I wanted to write an article for Brainstorm Health, I immediately said yes.
The Game Was Never the Point
I can’t believe I started a company at nearly 50.
When Patient Becomes a Verb
Today, my wife completed her second week of healing (radiation) sessions, so one third of her radiation treatments down.
Beyond Engagement: When Lived Experience Becomes Evidence
A recent article from Parexel on the evolving EU Health Technology Assessment (HTA) framework caught my attention.
Patients Participate in Trials. Families Make Participation Possible.
I recently read Evinova and ISPEP’s new report introducing the EACH Framework for patient-focused clinical trial recruitment.
Early Engagement Is Good. Continuous Engagement Is Better.
Bristol Myers Squibb recently published a white paper on early patient engagement in drug development. At its core is a simple but important idea: patients, caregivers, and advocacy organizations should be involved before key decisions are made, not after. The paper argues that lived experience should help shape development strategy, trial design, recruitment approaches, communications, and…
Every Person Saw One Version of Me
The weight of caregiving isn’t invisible because it’s small. It’s invisible because it’s everywhere.
The Future of Oncology AI Isn’t Intelligence. It’s Access.
After a weekend at ASCO, I finally had a chance to come home.