Revisiting: IVIG Access for PANS

Intravenous immunoglobulin (IVIG) can be a life-changing treatment for some people with PANS, yet obtaining insurance approval often requires families to navigate repeated denials, lengthy appeals, and significant financial burden.

Since this webinar was originally recorded, the Brain Inflammation Collaborative has published a study examining the real-world experiences of families seeking IVIG for PANS. The findings highlight the barriers to care and underscore the need for improved insurance policies and evidence-based advocacy. You can access the published study for free here.

In this webinar, we discuss:

• What PANS is and why IVIG is used

• Why access to IVIG remains difficult for many families

• The Brain Inflammation Collaborative’s research on families’ journeys to and with IVIG

• The clinical and public policy implications of improving access to care

Whether you are a patient, caregiver, clinician, researcher, or advocate, this conversation provides important context for understanding why improving access to IVIG remains a critical issue.

Watch the webinar below.