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Alzheimer's Caregiver · Nov 5, 2024

Balancing work and caregiving

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A demanding job and limited time

The last few weeks have been an extra demanding time work wise, and I wouldn’t call my normal work load light at all. I can tell it’s been getting to me because my sleep has been filled with stress dreams. 😩 (When I even get to sleep at all.)

It’s during these periods that I worry about the need to have quality “hang” time with Dave. He needs that interaction for his cognitive health more than ever….

I am incredibly fortunate I work from home, but it does mean that work demands leak into all hours of the days and nights. Early at 5 a.m. before he wakes up and after Dave goes to bed until I can’t keep my eyes open any longer.

Daytimes are for meetings. And when I have a gap between calls, I visit Dave in his office, say hi, and make sure he has fresh water. Sometimes we sit on his sofa for a few minutes, holding hands.

This schedule also means that if friends or family from out of town are visiting, you may get drafted to help with a project. Thank you, Matt, for helping change the batteries in all the smoke detectors. And thank you, Terry, for helping me change the filters on the whole home water purifier. 🙏🏾🙏🏾

This is the life of a young spouse who cares for someone with early onset Alzheimer’s. One of my friends in a Zoom support group (because when you work you don’t have time to attend in-person groups), also has a young child. And she was laid off recently. 😱

That type of scenario is the scariest, because health insurance is no joke when you aren’t yet qualified for Social Security and Medicare. But that is another topic for another week.

Today is another day full of meetings, including a short interview with a potential caregiver (hopefully they arrive on time).

Read on alzheimercaregiver.substack.com

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