Our EBOO Plan Fell Through

New Subscribers: Welcome to The Giggler! My name is Alexa. I initially started this newsletter as a place to share my original zany absurdist fiction with fellow goofballs, starting with my serialized adventure novel Over the Top Secret. Then my husband was diagnosed with ALS just before our wedding and our entire world turned upside down. Though we accepted the diagnosis from “experts,” we did not accept their advice to get our affairs in order. We immediately set out to save Kealoha’s life. This newsletter is now a documentation of our adventures in our mission to save Kealoha from ALS. For more info, visit the about page. You can read my previous update here.

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Hey Gigglers!

Hope you had a lovely Easter weekend. Recently Kealoha and I went on a whale watching tour (my first ever!) while the whales were super active here in Maui. We went waaaay out and encountered a massive humpback whale hanging out right underneath our boat! He held us hostage while he sang his eerily beautiful mating song. It was incredible!

In my last update I shared that we uncovered another element at play in Kealoha’s ALS symptoms and devised an aggressive plan to attack it head on. This plan involved traveling from our home in Maui to the Stem Cell Sports Institute of Southern California where we would stay for a month of aggressive EBOO treatments.

Welp… that plan never came to fruition.

But everything has worked out for the better. Let’s do a quick recap of Kealoha’s case so we’re all caught up and on the same page regarding where we are now:

Where We Started

We connected with the Stem Cell Sports Institute of Southern California shortly after Kealoha’s official ALS diagnosis by the Mayo Clinic last year (which was a year and a half after his sudden onset of symptoms). The stem cell institute discovered Kealoha was dealing with parasites in his brain, spine, liver, and gallbladder! He embarked on an intense three week parasite detox protocol. Once analysis showed no more parasites and significantly less inflammation, Kealoha was able to move to the next phase of treatment at the institute: three rounds of umbilical cord blood-derived stem cell IVs over the next six weeks.

Those stem cell treatments made a huge difference in his stamina (he went from needing 30+ minutes to recover after walking across a room to traversing the entire Maui County Fair grounds without breaking a sweat!). His breathing improved tremendously (Kealoha no longer struggled to breath through the night, which helped me sleep more soundly, too! WIN). His gait and posture improved (though were still impaired), he started walking more quickly (I literally lost him at Costco because he was suddenly moving so much faster), and the disease stopped progressing!

Over the next few months Kealoha actually showed signs of healing. His vocal strength and projection would randomly improve for full sentences here and there and, strangely, his left palm muscle gained thickness. It was awesome!

However, a few months later, in December of 2025, we noticed a sudden change in his stamina. Nothing major or necessarily concerning, but enough to get me proactively asking for another check in with the stem cell institute. Technically we’d already finished the treatment we’d signed up for, but I wanted to ensure there wasn’t something else going on.

According to their testing, there was.

Peeling Back Another Layer

We met with the institute to do another round of analysis and discovered Kealoha had a high T-cell count. So the institute dug deeper and found multiple viruses at play. (Viruses have been found to play a role in the onset of ALS symptoms in other patients. Apparently latent viruses can become reactivated through exposures to certain toxins or other viruses? I’m actively investigating.)

The institute recommended an aggressive approach to treatment, the same kind of treatment they would encourage for a patient with Lyme or HIV— a month of EBOO. Three-hour sessions instead of the typical 1-hour session, 2-3 days apart instead of the typical 1-2 weeks apart, and at least twelve sessions, if Kealoha could handle it. (Read more about EBOO in my last post.)

Kealoha had already done a few normal EBOO sessions at an ozone clinic here on Maui for a general overall health boost. He experienced positive results (his inflammation decreased and the actual color of his blood went from a dark purple to a healthy cherry red!). He was absolutely willing to give a more intense approach a try. So we planned to do our big month of EBOO this March.

We booked an extended stay hotel in CA near the stem cell institute, flew from Maui to my family in Las Vegas, batch cooked a bunch of healthy meals with my family’s help, packed up the car and prepared to drive to CA. Right as we were about to hit the road, the institute informed us that their schedule had been affected by an all-hands on deck emergency and that our EBOO plans were unfortunately cancelled.

We were shocked and disappointed for sure, especially since we had spent the previous two months eagerly awaiting to enact our grand plan to knock out another root cause for Kealoha! But sh*t happens. We just hoped everyone was okay and patiently waited to reschedule…

Unfortunately, despite our best efforts, we have not been able to make that month long-trip to the Stem Cell Sports Institute happen yet. At this point we aren’t sure if it can happen at all anymore, so we’ve had to take a step back and reassess our situation to come up with a new plan.

Adapt and Overcome

We returned to Maui not sure what to do. It was clear that the experimental treatment we had signed up for at the Stem Cell Sports Institute of Southern California made a big difference. However, it was also clear that either we need to do more stem cells in order to pack a lasting punch, or we need to dig deeper into remaining causes at play before Kealoha is truly able to heal for good. Either way, it felt like we had discovered another important piece to the puzzle, but we were suddenly on our own again. I prayed that God would make it obvious what our next steps should be.

We continued with our normal regimen, which lately involves Kealoha’s deep dive into sleep quality research. He believes quality sleep plays a massive role in recovery. He’s been collecting tons of sleep data with his Apple Watch, tracking every health metric a person could possibly track using multiple apps. Thanks to the data he has collected, and his determination to test everything with scientific rigor, we’ve discovered that having his last meal of the day by 4pm improves his sleep measurably! (Even before Kealoha’s diagnosis, we were always doing research, learning, and applying what we’ve learned to better our health. We’re two totally opposite sides of the same nerdy coin… soulmates 🤩.)

I then discovered a book called “Flood Your Body with Oxygen” by Ed McCabe. It was fascinating and ultimately led me to believe that EBOO is a very powerful treatment, indeed… and perhaps 3-hour sessions every 2-3 days would have been far too much for Kealoha to handle. I then realized perhaps the reason we couldn’t make our big EBOO trip work was because God was protecting Kealoha from harm. 🙏🏼

We then reflected on everything we’ve learned so far in this journey, the resources and contacts we have access to here on Maui, and came up with a plan of our own.

Our New Plan

Moving forward, we will do more bloodwork and testing for root causes again now that we’ve completed multiple therapies and treatment protocols. Kealoha will do 1-hour EBOO treatments once a week here on the island, with the goal of slowly increasing to 1.5 hour sessions over time. This is to address the viruses we think we discovered, as well as any other pathogens or toxins potentially at play. Additionally, he’ll do supportive therapies like PolyMVa IVs in between his EBOO appointments to give him strong mitochondrial support, Vitamin C IVs to continue oxidative therapy if/when he feels he needs a break from EBOO, and bioresonance feedback therapy twice a week for all the many benefits it provides Kealoha.

Eventually we’ll work up to doing Regenu3 frequency correction, but we don’t want to do too much at once. Our strategy is to start with more supportive therapies to strengthen Kealoha’s foundation before ramping up our attack on these pathogens. On top of all that, we will continue his Keto diet and supportive supplements. We’ll take things one treatment at a time.

We feel this approach is manageable, both physically and economically, and the best part is it’s only an hour drive from our home! I am truly astonished that these cutting edge therapies are available to us in one of the most remote places in the world. We have put together our own team of intelligent and compassionate individuals in the medical field intent on helping us solve this mystery. Thank you, God. 🙌

How its Going

Kealoha’s first EBOO treatment of this new plan was last week. Immediately after, the inflammation in his face visibly lessened and he was able to walk noticeably faster by the time we got home. And that was just within a few hours!

However, our data is a little muddy after this treatment because a few days later Kealoha came down with a sudden ear ache that robbed him of all his energy and ended us in the ER. He is totally fine and everything worked out! Let me just say that upfront. But the thing you have to understand is that Kealoha’s everyday threshold is already pretty dang full.

You see, it takes every ounce of strength he has to get up each day and fight the constant onslaught of issues he deals with. It takes his everything to stand from a sitting position, to lift a glass of water to his lips, to drink and eat without choking, to life his legs and walk without tripping on his own feet, to speak loud enough to be heard and clear enough to be understood, to maneuver his hands to get them to eventually do what he needs them to do. Not to mention he’s always dealing with constant fasciculations (muscle twitches) in his entire upper body and occasional muscle cramps… and that’s just what he shares with me. (Plus he has to deal with my Energizer Bunny Brain every day, so there’s that. 🤪).

With so much demanding his energy at every moment, anytime an unexpected issue is added to his plate it can tip the scales and deplete his energy pretty quickly. Something as simple as feeling anxious about being late for an appointment can really affect him now, let alone a new source of physical pain. (This is something that has taken us time to recognize and adapt to, since before ALS Kealoha was never affected by anything.)

Now that you understand this, what happened was that Kealoha had a simple ear ache which quickly turned out to be a debilitatingly painful case of severe TMJ in his jaw. The actual problem wasn’t the problem. It was the fact that the pain rapidly escalated, preventing him from opening his mouth enough to eat or drink or speak, which quickly depleted him of his energy to the point he needed total assistance standing, sitting, walking, etc. Plus, the whole time he was in severe pain which meant he wasn’t able to sleep.

Our first Dr visit got us antibiotics for an assumed ear infection, but Kealoha’s pain actually worsened after multiple doses. We ordered a mobile hydration IV with pain meds for Kealoha at our house, which brought the pain down enough to drive him an hour to the ER. There, the Dr said he did not have an ear infection (hence why the antibiotics we were prescribed didn’t work), but in fact was dealing with severe TMJ. He gave Kealoha a steroid IV to reduce inflammation and a quick round of bloodwork which came back looking great. As soon as we got home, Kealoha felt okay enough to eat a huge healthy meal, went straight to sleep and slept through the entire night. Kealoha bounced back to almost his 100% normal self the next day.

The whole experience left me in tatters having to witness Kealoha in more pain than I’ve ever seen him deal with before, but just as quickly as the situation became serious… things were back to normal again. Turns out, we think it was the mouth tape Kealoha started using the day before the pain started. He thought it might help him sleep better. 🙃

I hope this transparent snippet from our life illustrates just how much Kealoha carries on his shoulders every day, how impressively strong he is in every conceivable interpretation of the word, and how adaptable we have to be in order to manage it all.

Our Mentality

This illness is such a bizarre mystery, but we are determined to solve it. We are living in a time when many new treatment options are emerging and simply haven’t had the opportunity to be tested and proven. Health information is now readily available everywhere you look, people are sharing their stories of ALS recoveries and even complete ALS reversals, and AI technology allows us to crunch all the data to discover pieces of the health puzzle that previously went overlooked.

Now is the first time in history where we have a real shot at beating ALS, which would not only be an incredible victory for Kealoha, but for everyone battling this disease. And we truly believe Kealoha is a real contender to achieve this feat. He’s strong. He’s stubborn. And underneath the weight of this label he now carries, Kealoha is still impressively healthy (his bloodwork is fantastic, which is always baffling to doctors!). We will absolutely solve this mystery.

Thank God for all the amazing guardian angels He has sent our way. 🙏🏼🙌 His blessings are countless and He continues to guide us on our journey.

In summary:

• Kealoha is truly unbelievable!

• We are forging forward with a solid treatment plan— right here on Maui!

• Every day we peel back another layer of the onion and get closer to solving this mystery.

Thank you for your love and support, y’all. We’ll keep you updated!

Sincerely,
Alexa (AKA The Giggler)

P.S. Check out this article that came out yesterday about the incredible medical innovations taking place right now. In the words of one of my favorite anime characters, “Get Excited!”

P.P.S. HealingALS.org is a great resource for anyone facing this illness and in need of a supportive community. So many times I’ve encountered so-called “support” groups for ALS patients, but they’re nearly all communities for commiserating. (Some will even ban members who share what’s helped them!) HealingALS.org is a fantastic source of support and hope backed by real data and real recoveries for people in the same battle as Kealoha.