The Trick Your Eyes Do for Your Brain
The machine behind The Brain Tax.
Just an Engineer with USH
An engineer with Usher Syndrome digs through medical journals and writes about what the system misses.
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The Brain Tax
What losing your sight does to the brain. Not the eyes. The brain.
Why I Leave Cabinet Doors Open
An open cabinet door, and the sensory failure nobody understands.
The Hearing Side of Usher Syndrome
I thought this one would be easy to write. It wasn't.
The Supplement Nobody Questioned
What a 2023 Harvard study found about vitamin A and RP -- and why nobody told us
Where in the World is Usher Syndrome?
A Data Dig That Keeps Getting Deeper
The 20/25 Paradox
I read 20/25 on an eye chart. I can barely see the wall it's hanging on.
The Hope Nobody Explains
One Patient, 50 Trials, and the Guidance Gap That Affects Us All
Living with Usher Syndrome: A Window Into My Shrinking Sensory Map
What it feels like inside a shrinking sensory world