Episode 355: Building an Inclusive Playground and Community

In this episode, Rachel Madel interviews Jesse and Holly Erickson, parents of Bedford, a young child with Schwartz-Jampel syndrome. They share their journey to diagnosis, what it’s like navigating a rare condition with limited research and few clear answers, and the day-to-day realities families face such as unexpected barriers in common environments. They also describe how posts on social media…