Pam Cusick, Senior Vice President of Rare Patient Voice (RPV): Advancing Health Together — Patients, Caregivers, and Researchers

Our guest today is Pam Cusick Senior Vice President of Rare Patient Voice. Rare Patient Voice is a national community that connects patients and caregivers with researchers who genuinely want to learn from their lived experiences. Through this work, RPV ensures that people living with rare and chronic conditions have a direct voice in shaping studies, treatments, and health innovations. Their…