# tuberous sclerosis (audio feeds) — RSS Amplifier Recent posts from the 1 feeds in the RSS Amplifier directory that cover tuberous sclerosis. Page: Feed: --- ## [Episode 52: Prolonged Seizures (Sponsored by UCB)](https://tsc-now.blubrry.net/2026/01/02/episode-52-prolonged-seizures-sponsored-by-ucb/) _2026-01-02 · TSC Now_ In a special episode of TSC Now, Dan interviews Bridgett Langstaff, mom to Jude, a 17-year-old living with tuberous sclerosis complex (TSC) and epilepsy. Bridgett shares Jude’s diagnosis story and how they ultimately made their way to Mass General Hospital and Dr. Thiele. She also talks about Jude’s ongoing struggle with seizures, from infantile spasms as a baby, to partial seizures, to tonic… [Listen](https://media.blubrry.com/tsc_now/media.blubrry.com/tsc_now/content.blubrry.com/tsc_now/UCB_Podcast_mixdown.mp3) ## [Episode 51: Drug-Resistant Epilepsy (Sponsored by LivaNova)](https://tsc-now.blubrry.net/2025/11/30/episode-51-drug-resistant-epilepsy-sponsored-by-livanova/) _2025-11-30 · TSC Now_ November is Epilepsy Awareness Month, and to help raise awareness, TSC Now host Dan Klein talks to Starr Phipps, an adult living with drug-resistant epilepsy. She shares her story, including how she faced stigma as a child, how her lack of control over her seizures impacted her emotional and physical well-being, and how continuing to push for treatments changed her life and inspired her to help… [Listen](https://media.blubrry.com/tsc_now/media.blubrry.com/tsc_now/content.blubrry.com/tsc_now/LivaNova_2025_Podcast_mixdown.mp3) ## [Episode 50: What happens when a clinical trial fails?](https://tsc-now.blubrry.net/2025/04/11/episode-50-what-happens-when-a-clinical-trial-fails/) _2025-04-11 · TSC Now_ In the first episode of TSC Now in 2025, host Dan Klein tackles the challenging topic of what happens when a clinical trial fails and how failed clinical trials inform future research in tuberous sclerosis complex (TSC). Dan interviews Mary Kay Koenig, MD, Professor of Child Neurology and Associate Vice Chair for Clinical Research at University of Texas McGovern Medical School in Houston and… [Listen](https://media.blubrry.com/tsc_now/content.blubrry.com/tsc_now/Mary_Kay_Koenig_episode.mp3) ## [Navigating Housing Options for Dependent Adults with TSC (sponsored by Nobelpharma America)](https://tsc-now.blubrry.net/2024/12/24/navigating-housing-options-for-dependent-adults-with-tsc-sponsored-by-nobelpharma-america/) _2024-12-24 · TSC Now_ In this episode of TSC Now host Dan Klein is joined by Bruce Hainan and Jim Kotsailidis from Nobelpharma America, LLC and Shelly Meitzler, TSC Alliance Director of Outreach and Support, and mom to Ashlin and Mason with TSC. Shelly shares her experience looking for housing for her eldest daughter Ashlin, a dependent adult with tuberous sclerosis complex (TSC). She then shares the questions parents… [Listen](https://media.blubrry.com/tsc_now/content.blubrry.com/tsc_now/nobelpharma_pod_mixdown.mp3) ## [Drug-Resistant and Undertreated Epilepsy (sponsored by LivaNova)](https://tsc-now.blubrry.net/2024/11/27/drug-resistant-and-undertreated-epilepsy-sponsored-by-livanova/) _2024-11-27 · TSC Now_ In honor of National Epilepsy Awareness Month, TSC Now host Dan Klein is joined by Steven Wolf, MD, Director at the TSC Clinic Without Walls serving NYC, Westchester, Hudson Valley & Connecticut. Dr. Wolf also serves as the Director of Pediatric Epilepsy at Boston Children’s Health Physicians of New York and Connecticut. Dr. Wolf specializes in child neurology with a special emphasis on epilepsy.… [Listen](https://media.blubrry.com/tsc_now/content.blubrry.com/tsc_now/LivaNova_podcast_mixdown_FINAL.mp3)