# sickle (blogs) — RSS Amplifier Recent posts from the 1 feeds in the RSS Amplifier directory that cover sickle. Page: Feed: --- ## [Mental healthcare should be part of our sickle cell management](https://sicklecellanemianews.com/columns/mental-healthcare-should-be-part-sickle-cell-management/) _2026-08-27 · Shamonica Wiggins-Mayes · Sickle Cell Disease News – The Web's Daily Resource for Sickle Cell Disease News_ I missed another birthday celebration and had to send another “sorry, I can’t make it” message — not because I like canceling on people, but because I have sickle cell disease. Living with sickle cell means living with FOMO — the fear of missing out. I must budget my time and energy like my life \[…\] The post Mental healthcare should be part of our sickle cell management appeared first on Sickle… ## [Tips for working and keeping a job with sickle cell disease](https://sicklecellanemianews.com/columns/tips-working-keeping-job-sickle-cell-disease/) _2026-08-26 · Oluwatosin Adesoye · Sickle Cell Disease News – The Web's Daily Resource for Sickle Cell Disease News_ Keeping a job while living with sickle cell disease (SCD) can be challenging, especially when you have moderate to severe disease. Symptoms and complications can make it harder to maintain regular work hours or remain in a demanding career. For many warriors, unemployment and financial hardship can add to the emotional burden of living with \[…\] The post Tips for working and keeping a job with… ## [The sickle cell caregiver’s guide to hospital admissions and inpatient care](https://sicklecellanemianews.com/sickle-cell-hospital-admission-caregiver-guide/) _2026-08-26 · Oluwatosin Adesoye · Sickle Cell Disease News – The Web's Daily Resource for Sickle Cell Disease News_ Note: Oluwatosin Adesoye is a practicing physician living with sickle cell disease and is a columnist for Sickle Cell Disease News. A visit to the emergency room is often overwhelming for people living with sickle cell disease and their caregivers. However, when that emergency visit turns into a multi-day hospital stay, many caregivers find themselves \[…\] The post The sickle cell caregiver’s guide… ## [My medication schedule adjustments during pregnancy and postpartum](https://sicklecellanemianews.com/columns/medication-schedule-adjustments-during-pregnancy-postpartum/) _2026-08-25 · Mary Shaniqua · Sickle Cell Disease News – The Web's Daily Resource for Sickle Cell Disease News_ Note: This column describes the author’s own experiences with an array of treatments. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Ordinarily, like many other people living with sickle cell disease, I take daily medications to help manage my condition, prevent sickle cell crises, and \[…\] The post My medication schedule… ## [NFL Alumni, Genetix team up to raise awareness of sickle cell treatments](https://sicklecellanemianews.com/news/nfl-alumni-teams-genetix-sickle-cell-awareness-campaign/) _2026-08-25 · Marisa Horak, MS · Sickle Cell Disease News – The Web's Daily Resource for Sickle Cell Disease News_ Genetix Biotherapeutics is teaming up with the National Football League Alumni Association for a campaign to increase awareness of one-time genetic treatments for sickle cell disease (SCD). “Despite hundreds of patients now treated, the vast majority of eligible patients remain untreated, primarily due to lack of awareness that these treatment options are available today,” David \[…\] The post NFL… ## [Sickle cell pain crisis: A caregiver’s guide to home management](https://sicklecellanemianews.com/sickle-cell-crisis-home-management/) _2026-08-21 · Oluwatosin Adesoye · Sickle Cell Disease News – The Web's Daily Resource for Sickle Cell Disease News_ The first signs of a sickle cell disease pain crisis can spark instant panic. But not every pain crisis requires rushing to the emergency room. Some mild to moderate sickle cell pain episodes can be safely managed at home if the person is old enough to communicate their symptoms, their pain responds to prescribed home \[…\] The post Sickle cell pain crisis: A caregiver’s guide to home management… ## [Delayed puberty and other sickle cell challenges that aren’t widely discussed](https://sicklecellanemianews.com/columns/delayed-puberty-sickle-cell-challenges-widely-discussed/) _2026-08-19 · Oluwatosin Adesoye · Sickle Cell Disease News – The Web's Daily Resource for Sickle Cell Disease News_ Previously, I’d never publicly shared my experiences with delayed puberty and how deeply it affected me. Looking back, I realize that it was an important part of my journey with sickle cell disease (SCD). I hope my story will help young warriors and caregivers understand this often-overlooked complication and remind them that they are not \[…\] The post Delayed puberty and other sickle cell… ## [Review highlights non-opioid options for sickle cell pain management](https://sicklecellanemianews.com/news/review-highlights-non-opioids-sickle-cell-pain-management/) _2026-08-18 · Steve Bryson, PhD · Sickle Cell Disease News – The Web's Daily Resource for Sickle Cell Disease News_ Common pain relievers, such as nonsteroidal anti-inflammatory drugs (NSAIDs) or acetaminophen, combined with standard opioid care, may provide meaningful relief for acute pain in people with sickle cell disease (SCD), according to a review study. Cognitive behavioral therapy, a type of talk therapy, also showed signs of efficacy against chronic SCD pain, while other treatments, \[…\] The post Review… ## [Learning to keep moving forward, even when I lack motivation](https://sicklecellanemianews.com/columns/learning-keep-moving-forward-lack-motivation/) _2026-08-17 · Dunstan Nicol-Wilson · Sickle Cell Disease News – The Web's Daily Resource for Sickle Cell Disease News_ Recently, I’ve been struggling with a departure from my normal routine. I’ve written about how exercise and good nutrition have helped me manage my sickle cell disease, but I’ve been traveling a lot and have found myself thrown off balance in ways I didn’t anticipate. At first, I blamed it on the time difference. I \[…\] The post Learning to keep moving forward, even when I lack motivation appeared… ## [Growing up with sickle cell disease: What my parents did right](https://sicklecellanemianews.com/growing-up-what-my-parents-did-right/) _2026-08-17 · Mary Shaniqua · Sickle Cell Disease News – The Web's Daily Resource for Sickle Cell Disease News_ So, your child has been diagnosed with sickle cell disease. What now? Grieve, but don’t let it paralyze you. The greatest risk isn’t the grief itself, but how it can freeze parents in fear, denial, or helplessness. Because raising a child with sickle cell, however unfair, means you need to step up as a parent who \[…\] The post Growing up with sickle cell disease: What my parents did right appeared… ## [Earn crypto for idle GPUs (Sponsored)](https://crawlproof.com/a/w1bFbxXgNywP) _2026-08-17 · **Sponsored**_ Run one CLI, host Qwen/Llama/Mistral, and earn BTC, ETH, SOL, or USDC ## [Coping with sickle cell caregiver burnout: Resources and support](https://sicklecellanemianews.com/sickle-cell-caregiver-burnout/) _2026-08-17 · Oluwatosin Adesoye · Sickle Cell Disease News – The Web's Daily Resource for Sickle Cell Disease News_ Note: Oluwatosin Adesoye is a practicing physician living with sickle cell disease and is a columnist for Sickle Cell Disease News. Caring for someone with sickle cell disease is an act of love that often happens quietly in emergency rooms and hospital wards, and during sleepless nights at home. Caregivers become advocates, medication reminders, chauffeurs, \[…\] The post Coping with sickle cell… ## [Moving from pediatric to adult sickle cell care: How to navigate the transition](https://sicklecellanemianews.com/pediatric-to-adult-sickle-cell-transition/) _2026-08-17 · Mary Shaniqua · Sickle Cell Disease News – The Web's Daily Resource for Sickle Cell Disease News_ Note: Mary Shaniqua lives with sickle cell disease and is a columnist for Sickle Cell Disease News. Growing up, I had excellent pediatric hematology care. It was consistent, I had a trusted specialist nurse, frequent appointments and testing, and so on. Everything changed when I transitioned to the adult clinic. Before I could even adjust, \[…\] The post Moving from pediatric to adult sickle cell… ## [How caregivers can advocate for their loved one at a sickle cell appointment](https://sicklecellanemianews.com/sickle-cell-appointment-advocacy/) _2026-08-17 · Dunstan Nicol-Wilson · Sickle Cell Disease News – The Web's Daily Resource for Sickle Cell Disease News_ Note: Dunstan Nicol-Wilson lives with sickle cell disease and is a columnist for Sickle Cell Disease News. A hematology appointment may last only 20 or 30 minutes, but the decisions made during that time can shape the months that follow. As a caregiver, your preparation and observations can help ensure those decisions reflect everyday life. \[…\] The post How caregivers can advocate for their loved… ## [Guest Voice: How we care for the people who survive sickle cell disease](https://sicklecellanemianews.com/guest-voices/guest-voice-how-we-care-people-survive-sickle-cell-disease/) _2026-08-14 · Wunmi Bakare · Sickle Cell Disease News – The Web's Daily Resource for Sickle Cell Disease News_ When I received a stem cell transplant in 2019, I was given something I had dreamed about for more than three decades: the chance to live without sickle cell disease. My brother was my donor, and because he was a perfect match, the transplant process was a success. For the first time in my life, \[…\] The post Guest Voice: How we care for the people who survive sickle cell disease appeared first on… ## [The cost of connecting with others in the sickle cell community](https://sicklecellanemianews.com/columns/cost-connecting-others-sickle-cell-community/) _2026-08-13 · Shamonica Wiggins-Mayes · Sickle Cell Disease News – The Web's Daily Resource for Sickle Cell Disease News_ “We lost a gentle soul yesterday. Rest warrior Daryl Rosborough.” Reading that sentence as I checked my Facebook first thing in the morning felt like a ton of bricks crashing down on me. Daryl was more than a friend; he was like an older brother to me. Sadly, he passed away on July 13, just \[…\] The post The cost of connecting with others in the sickle cell community appeared first on Sickle Cell… ## [Beware of online sickle cell disease ‘advocacy’ that aims to trick you](https://sicklecellanemianews.com/columns/beware-online-sickle-cell-disease-advocacy-aims-trick-you/) _2026-08-12 · Oluwatosin Adesoye · Sickle Cell Disease News – The Web's Daily Resource for Sickle Cell Disease News_ Can people who don’t have sickle cell disease (SCD) advocate for the community? Absolutely. However, I think there is an important distinction that deserves attention. Usually, most advocates are patients, caregivers, healthcare professionals, or family members of people living with the disease. However, I’ve recently seen an influx of people joining online support groups and \[…\] The post Beware…