# long covid research (news sources) — RSS Amplifier Recent posts from the 1 feeds in the RSS Amplifier directory that cover long covid research. Page: Feed: --- ## [The SpOTT diagnosis for ME/CFS](https://s4me.info/threads/the-spott-diagnosis-for-me-cfs.52013/) _2026-08-26 · Jonathan Edwards · Science for ME_ I have invented a dignostic test for ME/CFS. It is 95% likely to be useless but that leaves 5%. Moreover, I have no idea what result would be diagnostic. But it seemed a fun idea and there are no needles or loud noises. We were discussing predictive coding. Do not worry, this is not to do with mind-brain training. If anything it might show there is a shift with predictive coding that makes sense… ## [Identifying and renaming inaccurate, inappropriate or minimising words, phrases, etc. in ME/CFS](https://s4me.info/threads/identifying-and-renaming-inaccurate-inappropriate-or-minimising-words-phrases-etc-in-me-cfs.43422/) _2026-08-26 · Utsikt · Science for ME_ The purpose of this thread is to identify and rename words, phrases, etc. that are used to describe aspects of living with ME/CFS that are inaccurate, inappropriate, minimising, etc., and to try and find better descriptions to better communicate our reality to those around us. The inspiration for this thread was a discussion during the making of the PEM factsheet and this thread on a blog post… ## [Brain Retraining treatment for ME/CFS and Long COVID - discussion thread](https://s4me.info/threads/brain-retraining-treatment-for-me-cfs-and-long-covid-discussion-thread.40713/) _2026-08-26 · RaviHVJ · Science for ME_ Article: Can Brain Retraining Help Me Recover From Long COVID? A journalist quite enamored with the mystical healing properties of mind-body techniques published this article last month: https://experiencelife.lifetime.life/article/can-brain-retraining-help-me-recover-from-long-covid/ Moderator note: There is also some discussion of this topic on a members only thread here . ## [Predictive processing, predictive coding - a BPS theory of causation](https://s4me.info/threads/predictive-processing-predictive-coding-a-bps-theory-of-causation.51937/) _2026-08-26 · dave30th · Science for ME_ Moderation note: we also have a Members Only thread discussing this topic - here posts have been moved from the Paul Garner thread \*\*\*\*\*\*\*\*\*\*\*\*\*\*\*\*\*\*\*\*\*\*\*\*\*\*\* Jonathan Edwards said: For some reason some psychological medicine people have misunderstood a basic neuroscience theory and got it back to front. Click to expand... Jo, can you explain what you mean here? What is back to front exactly? ## [JAMA - Postural Orthostatic Tachycardia Syndrome (POTS) A Review - Chung, Raj, 2026](https://s4me.info/threads/jama-postural-orthostatic-tachycardia-syndrome-pots-a-review-chung-raj-2026.51995/) _2026-08-26 · Kalliope · Science for ME_ Abstract Importance Postural orthostatic tachycardia syndrome (POTS) is a chronic autonomic disorder characterized by excessive orthostatic tachycardia and multisystem symptoms that affects an estimated 0.1% to 1% of the US population. POTS can substantially impair daily functioning and quality of life. Observations Consensus criteria define POTS by chronic symptoms of orthostatic intolerance… ## [FND Nope](https://s4me.info/threads/fnd-nope.48008/) _2026-08-26 · Liie · Science for ME_ I happened to come across the following charmingly named site: FND Nope: Challenging the FND Narrative Challenge misconceptions, and advocate for those misdiagnosed with Functional Neurological Disorder. fndnope.org I don't see it mentioned on the forum previously. Here are a few articles that seem relevant for the forum: FND: Philosophy Masquerading as Diagnosis - Part 1 FND is a matter of… ## [Make PEM central to ME research \[blog post by me\]](https://s4me.info/threads/make-pem-central-to-me-research-blog-post-by-me.52011/) _2026-08-26 · Siebe · Science for ME_ go straight to the blog post Post-exertional malaise (PEM) is the defining feature of Myalgic Encephalomyelitis (ME). But often it doesn’t take center stage in research on ME and is instead treated as an afterthought, or even ignored altogether. If we really want to make progress on ME, research should make PEM central in ME research. What I’m talking about here is not the common problem that a up… ## [Functional dissociation of stimulus intensity encoding and predictive coding of pain in the insula, 2017, Geuter et al.](https://s4me.info/threads/functional-dissociation-of-stimulus-intensity-encoding-and-predictive-coding-of-pain-in-the-insula-2017-geuter-et-al.52018/) _2026-08-26 · Chandelier · Science for ME_ Functional dissociation of stimulus intensity encoding and predictive coding of pain in the insula Spoiler: Authors Geuter, Stephan; Boll, Sabrina; Eippert, Falk; Büchel, Christian Abstract The computational principles by which the brain creates a painful experience from nociception are still unknown. Classic theories suggest that cortical regions either reflect stimulus intensity or additive… ## [Campaigning for the service model we all need - one which doesn’t make us worse](https://s4me.info/threads/campaigning-for-the-service-model-we-all-need-one-which-doesn%E2%80%99t-make-us-worse.52015/) _2026-08-26 · hotblack · Science for ME_ Something I’ve been thinking about. And we’ve discussed in bits elsewhere. But thought a thread may be useful (edit: title changed to reflect the aims a bit better and be less clickbaity). Slightly selfishly I think severe should be the focus of campaigns and lobbying but also think there is a practical point of differentiation here. Something which makes ME/CFS stand apart. Loads of conditions… ## [Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.](https://s4me.info/threads/paul-garner-on-long-covid-and-me-cfs-bmj-articles-and-other-media.15629/) _2026-08-25 · lycaena · Science for ME_ This post has been copied and some following posts moved from this thread: Possibility of ME or PVFS after COVID-19, Long Covid "Paul Garner: For 7 weeks I have been through a roller coaster of ill health, extreme emotions, and utter exhaustion May 5, 2020 Paul Garner, professor of infectious diseases at Liverpool School of Tropical Medicine, discusses his experience of having covid-19" ... Read… ## [Non-custodial Crypto Payments & Escrow (Sponsored)](https://crawlproof.com/a/uojvbcN8pNHD) _2026-08-25 · **Sponsored**_ Accept multi-chain crypto with trustless escrow, instant confirmations, and no KYC ## [Michael Sharpe retires as Psychological Medicine Lead 30/09/2022](https://s4me.info/threads/michael-sharpe-retires-as-psychological-medicine-lead-30-09-2022.30208/) _2026-08-23 · Sly Saint · Science for ME_ The Lead for Psychological Medicine at Oxford University Hospitals (OUH) has retired from the position after more than a decade in the role. Professor Michael Sharpe has been associated with OUH for more than 50 years and has retired from his Trust Lead role and associated University of Oxford posts. He first worked for the Trust in 1973, as a labourer digging the foundations for the John… ## [Peripheral metabolic signatures in patients with neuropsychiatric long COVID syndrome, 2026, Bergmann et al.](https://s4me.info/threads/peripheral-metabolic-signatures-in-patients-with-neuropsychiatric-long-covid-syndrome-2026-bergmann-et-al.51762/) _2026-08-23 · SNT Gatchaman · Science for ME_ Peripheral metabolic signatures in patients with neuropsychiatric long COVID syndrome Spoiler: Authors Dario Lucas Bergmann; Sophie Neugebauer; Tonia Rocktaeschl; Eva-Maria Dommaschk; Meng Li; Alexander Weuthen; Alexander Refisch; Nikolai Blekic; Michael Kiehntopf; Andre Scherag; Helgi B Schioeth; Chai K Lim; Nils Opel; Martin Walter; Bianca Besteher Neuropsychiatric symptoms are considered the… ## [The buspirone challenge test clearly distinguishes ME/CFS patients from healthy controls: why is it not being developed and deployed?](https://s4me.info/threads/the-buspirone-challenge-test-clearly-distinguishes-me-cfs-patients-from-healthy-controls-why-is-it-not-being-developed-and-deployed.6421/) _2026-08-23 · Hip · Science for ME_ Moderator note: Link to @forestglip 's excellent summary of what is known, as of August 2026, about the prolactin response to a buspirone challenge in ME/CFS here See also a Google document where some members are compiling findings and ideas related to prolactin response here . \*\*\*\*\*\*\*\* I have just come across the buspirone challenge test , a straightforward blood test for ME/CFS which measures… ## [Maeve Boothby O'Neill - articles about her life, death and inquest](https://s4me.info/threads/maeve-boothby-oneill-articles-about-her-life-death-and-inquest.31707/) _2026-08-23 · dave30th · Science for ME_ Coda article, When the doctor doesn't listen, David Tuller (focus on Maeve O'Neill's story) https://www.codastory.com/waronscience/chronic-fatigue-syndrome-long-covid-unexplained-symptoms/ Moderator note: We have an In Memory thread for Maeve here: Maeve O'Neill For general discussion of the topic please go to this thread: A discussion about feeding issues in the severely ill. Discussion of the… ## [Immediate and Long-Term Effects of Hyperbaric Oxygenation in Patients with Long COVID Syndrome, 2023, Lindenmann et al](https://s4me.info/threads/immediate-and-long-term-effects-of-hyperbaric-oxygenation-in-patients-with-long-covid-syndrome-2023-lindenmann-et-al.51971/) _2026-08-23 · Hutan · Science for ME_ Immediate and Long-Term Effects of Hyperbaric Oxygenation in Patients with Long COVID-19 Syndrome Using SF-36 Survey and VAS Score: A Clinical Pilot Study Spoiler: Authors Lindenmann, Joerg; Porubsky, Christian; Okresa, Lucija; Klemen, Huberta; Mykoliuk, Iurii; Roj, Andrej; Koutp, Amir; Kink, Eveline; Iberer, Florian; Kovacs, Gabor; Krause, Robert; Smolle, Josef; Smolle-Juettner, Freyja Maria… ## [USA: News from the Bateman Horne Center](https://s4me.info/threads/usa-news-from-the-bateman-horne-center.24836/) _2026-08-23 · ahimsa · Science for ME_ This thread has news updates from the BHC. For threads on useful resources provided by BHC see the Resources forum. Ever-Growing Awareness by Lucinda Bateman, MD Mar 2, 2022 https://batemanhornecenter.org/evergrowing-awareness/ batemanhornecenter.org said: It has been my life’s work to raise awareness of ME/CFS. In 2000, I typed out “raise awareness of CFS and FM” in large font on a piece of paper… ## [Persistent One-Year Mortality Gradient After STEMI and COVID-19: Long-Term Outcomes From the NACMI Registry, 2026, Dehghani et al.](https://s4me.info/threads/persistent-one-year-mortality-gradient-after-stemi-and-covid-19-long-term-outcomes-from-the-nacmi-registry-2026-dehghani-et-al.51958/) _2026-08-22 · Chandelier · Science for ME_ Persistent One-Year Mortality Gradient After STEMI and COVID-19: Long-Term Outcomes From the NACMI Registry Spoiler: Authors Dehghani, Payam; Ellingson, Chase J.; Singh, Jyotpal; Cravero, Ellen; Mancini, G.B. John; Stanberry, Larissa; Madan, Mina; Benziger, Catherine P.; Ghasemzadeh, Nima; Bortnick, Anna E.; Kankaria, Rohan; Grines, Cindy L.; Nayak, Keshav; Mahmud, Ehtisham; Bainey, Kevin R.;… ## [Immunological Patient Stratification in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome 2024 Rohrhofer et al](https://s4me.info/threads/immunological-patient-stratification-in-myalgic-encephalomyelitis-chronic-fatigue-syndrome-2024-rohrhofer-et-al.36434/) _2026-08-22 · Dolphin · Science for ME_ Published - see here Preprint https://www.preprints.org/manuscript/202311.2007/v1 Immunological Patient Stratification in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Johanna Rohrhofer , Lisa Hauser , Lisa Lettenmaier , Lena Lutz , Larissa Koidl , Salvatore Alessio Gentile , Davide Ret , Michael Stingl ... Read more ## [Community Symposium on the Molecular Basis of ME/CFS Sept 11 2026 (Stanford/Ron Davis)](https://s4me.info/threads/community-symposium-on-the-molecular-basis-of-me-cfs-sept-11-2026-stanford-ron-davis.51966/) _2026-08-22 · Chandelier · Science for ME_ Zoom webinar registration: Welcome! You are invited to join a webinar: Community Symposium on the Molecular Basis of ME/CFS. After registering, you will receive a confirmation email about joining the webinar. On behalf of Dr. Ronald Davis, the Stanford Genome Technology Center is pleased to host a virtual Community Symposium on Friday, September 11, at 8:00 AM. The symposium will feature a series… ## [McMaster University conducting an LP trial (FALCON)](https://s4me.info/threads/mcmaster-university-conducting-an-lp-trial-falcon.51303/) _2026-08-22 · rvallee · Science for ME_ Fatigue in Long COVID (FALCON) Study registration: https://clinicaltrials.gov/study/NCT07697261 Lead researcher: Jason Busse Long COVID affects about 6 in 100 people after a COVID-19 infection. It can cause ongoing problems like ongoing tiredness, muscle pain, and "brain fog." We know very little about which treatments might be helpful for long COVID. The goal of this trial is to compare two… ## [Open directory of blogs (Sponsored)](https://crawlproof.com/a/mdWvz4zdkdxu) _2026-08-22 · **Sponsored**_ Drop URLs or OPML — get per-blog pages plus machine-readable JSON, OPML, text ## [What is the Todd Davenport approach to pacing?](https://s4me.info/threads/what-is-the-todd-davenport-approach-to-pacing.38576/) _2026-08-22 · Sasha · Science for ME_ I just listened to a very interesting interview with Todd Davenport ( Pacing and how to exercise safely in Long Covid and ME/CFS ) in which he discusses using heart rate and heart rate variability to guide patients in how to stay below their PEM threshold. He said lots of interesting things - obviously, there's a lot to this topic - and rather than guddle about all over the Internet trying to… ## [Broken Battery Updates](https://s4me.info/threads/broken-battery-updates.49168/) _2026-08-22 · Chandelier · Science for ME_ I think it makes sense to create a thread for @Adam pwme ’s Broken Battery content. His documentary about " the greatest medical scandal of the 21th century " has almost 210,000 views on YouTube. Apart from that, he often makes relevant posts on his socials and he‘s also a diligent archivist of TV reports about ME/CFS. ## [Prior COVID-19 infection and fibromyalgia criteria fulfillment: a comparative cross-sectional study, 2026, Alhayali et al.](https://s4me.info/threads/prior-covid-19-infection-and-fibromyalgia-criteria-fulfillment-a-comparative-cross-sectional-study-2026-alhayali-et-al.51965/) _2026-08-22 · Chandelier · Science for ME_ Prior COVID-19 infection and fibromyalgia criteria fulfillment: a comparative cross-sectional study Spoiler: Authors Alhayali, Mustafa; Salman, Sami; Shahrori, Mustafa A.; Ahmed Shimal, Aya; Ahmed, Marafi Jammaa; Al-mashhadani, Marwah; Shukur, Zainab; Alfirtusi, Noor; Al-Obaidi, Ahmed Dheyaa Abstract​ Background: Fibromyalgia (FM) is a chronic widespread pain syndrome frequently accompanied by… ## [UK Action for ME Big Survey 2025 - closes 27/1/26 (UK residents only)](https://s4me.info/threads/uk-action-for-me-big-survey-2025-closes-27-1-26-uk-residents-only.46679/) _2026-08-22 · Trish · Science for ME_ UK Action for ME Big Survey 2025 Quoted from the Action for ME website: \_\_\_\_\_\_\_\_\_\_\_\_\_\_\_\_\_\_ Our 2025 Big Survey is now open The survey will close at 11.59pm on Tuesday 27 January 2026. Please make sure that you have finished the survey and submitted your responses before this date. We have two separate surveys: one for people aged 18 (Adults) and over and one for people aged 17 and under (Young… ## [Beyond Blood Tests: Rethinking ME/CFS & Long COVID Diagnosis with Jonas Axelsson, MD, PhD](https://s4me.info/threads/beyond-blood-tests-rethinking-me-cfs-long-covid-diagnosis-with-jonas-axelsson-md-phd.51967/) _2026-08-22 · SWA · Science for ME_ "In today's episode, Makena Thompson sits down with Dr. Jonas Axelsson, a Swedish physician-scientist specializing in post-viral diseases, to address one of the most urgent questions in ME/CFS and long COVID care: why do standard blood tests keep coming back normal when patients clearly are not well?" ## [Behavioral and electrophysiological evidence of residual cognitive impairment in post-covid brain fog: a visual P300 study, 2026, Wilson et al.](https://s4me.info/threads/behavioral-and-electrophysiological-evidence-of-residual-cognitive-impairment-in-post-covid-brain-fog-a-visual-p300-study-2026-wilson-et-al.51929/) _2026-08-22 · Chandelier · Science for ME_ Behavioral and electrophysiological evidence of residual cognitive impairment in post-covid brain fog: a visual P300 study Spoiler: Authors Wilson, Matthew J.; Hill, Christopher M.; Thornton, David M.; Stanley, Nicholas S. Highlights​ COVID-19 “brain fog” describes a collection of symptoms that include difficulties with higher level cognitive functions, most notably those of attention, memory, and… ## [Persistent Mitochondrial and Endothelial Dysfunction in Non-Hospitalized Patients with Long COVID, 2026, Ono et al.](https://s4me.info/threads/persistent-mitochondrial-and-endothelial-dysfunction-in-non-hospitalized-patients-with-long-covid-2026-ono-et-al.51594/) _2026-08-22 · Chandelier · Science for ME_ Persistent Mitochondrial and Endothelial Dysfunction in Non-Hospitalized Patients with Long COVID Spoiler: Authors Rie Ono Shin Takayama Shin Takayama M Michiaki Abe Ryutaro Arita Ryutaro Arita K Koh Onodera K Kota Ishizawa T Takeshi Kanno Natsumi Saito Natsumi Saito Akiko Kikuchi Akiko Kikuchi T Takaaki Abe See less Tadashi Ishii Tadashi Ishii Abstract​ Long COVID, a major post-acute infection… ## [Intestinal flagellin drives multisystem inflammation through TLR5-IL-15-ARA axis, 2026, Geng et al.](https://s4me.info/threads/intestinal-flagellin-drives-multisystem-inflammation-through-tlr5-il-15-ara-axis-2026-geng-et-al.51900/) _2026-08-22 · SNT Gatchaman · Science for ME_ Intestinal flagellin drives multisystem inflammation through TLR5-IL-15-ARA axis Spoiler: Authors Jiejie Geng; Yumeng Zhu; Siyu Chen; Xiyu Song; Qiang Huang; Hongyan Ma; Hongjiao Liu; Xu Yang; Xiang Zhang; Jinxin Zhang; Lingjie Luo; Yanwei Wu; Shuhui Dai; Jie Cheng; Cui Zhang; Liang Chen BACKGROUND Systemic inflammatory diseases including rheumatoid arthritis (RA), ankylosing spondylitis (AS), IBD… ## [USA: News from Solve ME](https://s4me.info/threads/usa-news-from-solve-me.19489/) _2026-08-22 · Andy · Science for ME_ The Solve Newsletter thread has been merged with this thread. Spring 2018 Contents: Page 2 - SMCI This Quarter: A Summary of Our Work Page 5 - SMCI Welcomes Two New Members to Its Board of Directors Page 6 - What’s in a Definition? Finding a Common Language for ME/CFS Page 8 - PEM: It’s Time to Retire the Term Page 9 - Dr. Maureen Hanson: From Plant Biology to ME/CFS Champion Page 12 - Advocacy in… ## [EBV Reprograms B Cells in an Autoimmune-Like Fashion in Patients with COVID-19, 2026, Chen et al.](https://s4me.info/threads/ebv-reprograms-b-cells-in-an-autoimmune-like-fashion-in-patients-with-covid-19-2026-chen-et-al.51881/) _2026-08-22 · SNT Gatchaman · Science for ME_ EBV Reprograms B Cells in an Autoimmune-Like Fashion in Patients with COVID-19 Spoiler: Authors Daniel Guorui Chen; Dan Yuan; Yapeng Su; Andrew Magis; Helen Chu; Jason D Goldman; James R Heath Epstein-Barr virus (EBV) reprograms B cells in autoimmune disease. Reprogrammed EBV+ B cells activate nearby B and CD4+ T cells, via upregulated antigen presentation and costimulatory machinery, to drive… ## [AI Summaries & Audio Briefings (Sponsored)](https://crawlproof.com/a/icoo0Jx0YLqR) _2026-08-22 · **Sponsored**_ Read AI summaries and listen to concise audio briefings for the latest stories. ## [Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS](https://s4me.info/threads/reddit-interesting-posts-on-reddit-including-what-some-doctors-say-about-me-cfs.13013/) _2026-08-22 · Guest 2176 · Science for ME_ Note: There is also a members only thread discussing Reddit here Reddit thread on r/philosophy on the ethical questions involved in ME/CFS debate ## [ME Epidemiology - prevalence and peak ages of onset](https://s4me.info/threads/me-epidemiology-prevalence-and-peak-ages-of-onset.10373/) _2026-08-21 · Simon M · Science for ME_ Moderator note: This post and the next two have been copied, and subsequent posts moved from this thread: JAMA -"Advances in understanding the Pathophysiology of Chronic Fatigue Syndrome" by Anthony Komaroff Posts about sex ratio have been moved to a new thread: ME/CFS Epidemiology - sex ratios, female predominance Jonathan Edwards said: Those for me would be things like: 1. Epidemiological… ## [ME/CFS and Long Covid charities/ organisations - International and National](https://s4me.info/threads/me-cfs-and-long-covid-charities-organisations-international-and-national.35206/) _2026-08-21 · Hutan · Science for ME_ I thought it would be useful to have a list of all the active international and national level ME/CFS charities and research foundations not specific to one research institution around the world. We can add to it as we find them. Please post below with organisations and a website and contact email if they have them. For those organisations that we have a news thread for, I'll link to the relevant… ## [Modafinil Ameliorated Fibromyalgia Syndrome in Rats by Modulating Mast Cells & Microglia Activation Through Dopamine/Substance P/MRGPRX…, 2025, Kamal](https://s4me.info/threads/modafinil-ameliorated-fibromyalgia-syndrome-in-rats-by-modulating-mast-cells-microglia-activation-through-dopamine-substance-p-mrgprx%E2%80%A6-2025-kamal.51953/) _2026-08-21 · Chandelier · Science for ME_ Modafinil Ameliorated Fibromyalgia Syndrome in Rats by Modulating Mast Cells and Microglia Activation Through Dopamine/Substance P/MRGPRX/Histamine and PI3K/p-Akt/NF-κB Signaling Pathways Spoiler: Authors Kamal, Mennat-Allah M.; Essam, Reham M.; Abdelkader, Noha F.; Zaki, Hala F. Abstract Fibromyalgia syndrome (FMS) is characterized by prolonged, widespread musculoskeletal pain accompanied by… ## [News from France](https://s4me.info/threads/news-from-france.18119/) _2026-08-21 · ME/CFS Science Blog · Science for ME_ This thread is intended to get an overview of ME/CFS news in France. ## [News from Austria and Switzerland](https://s4me.info/threads/news-from-austria-and-switzerland.22093/) _2026-08-21 · MSEsperanza · Science for ME_ A thread for general news, events, articles etc from Austria and Switzerland. ## [News from Germany](https://s4me.info/threads/news-from-germany.11006/) _2026-08-21 · TiredSam · Science for ME_ The following has come to my attention (thanks @Philipp ): http://dip21.bundestag.de/dip21/btd/19/126/1912632.pdf It is a reply to a list of questions which a few German MPs put to the government: reply of the Federal Government to the Minor Question by Maria Klein-Schmeink, Dr Kirsten Kappert-Gonther, Kordula Schulz-Asche, other Members and the Group of the Alliance 90/the Greens Click to… ## [Post-Infectious Encephalitis Through the Lens of Long COVID, 2026, Ahmed](https://s4me.info/threads/post-infectious-encephalitis-through-the-lens-of-long-covid-2026-ahmed.51952/) _2026-08-21 · Dolphin · Science for ME_ Free fulltext: https://ojs.lib.uwo.ca/index.php/uwomj/article/download/25031/19393 UWOMJ 2026 94(1) Ahmed & Barkhouse (2026) 1 of 11 Editorial Post-Infectious Encephalitis Through the Lens of Long COVID Minhal Ahmed1\*, Kate Barkhouse1 1 Schulich School of Medicine & Dentistry, Western University, London, Ontario, Canada \* Correspondence: mahmed12028@meds.uwo.ca Abstract: Post COVID 19 condition… ## [The Sick Times: A journalist-founded website chronicling the Long Covid crisis](https://s4me.info/threads/the-sick-times-a-journalist-founded-website-chronicling-the-long-covid-crisis.36159/) _2026-08-21 · SNT Gatchaman · Science for ME_ https://thesicktimes.org/ We report on the common, life-changing disease following Covid-19 infection that affects over 65 million people worldwide and can be fatal. Our coverage spans related infection-associated chronic conditions such as myalgic encephalomyelitis, dysautonomia, mast cell activation syndrome, and more. Unlike many outlets, we continue to report on the impact of the ongoing… ## [United Kingdom: Long Covid Kids](https://s4me.info/threads/united-kingdom-long-covid-kids.25217/) _2026-08-21 · rvallee · Science for ME_ Edit: another one Did the BBC ever cover the Millions Missing protests? Not mad about this coverage, but the only difference here is perception, this is essentially the same issue. ## [Patient-reported harm from NHS treatment or care, or the lack of access to care: a cross-sectional survey…, 2025, Crocker et al.](https://s4me.info/threads/patient-reported-harm-from-nhs-treatment-or-care-or-the-lack-of-access-to-care-a-cross-sectional-survey%E2%80%A6-2025-crocker-et-al.51951/) _2026-08-21 · Chandelier · Science for ME_ Patient-reported harm from NHS treatment or care, or the lack of access to care: a cross-sectional survey of general population prevalence, impact and responses Spoiler: Authors Crocker, Helen; Cromwell, David A; Modha, Shivali; Gray, Alastair McIntosh; Graham, Chris; Thana, Lavanya; Fitzpatrick, Raymond; Vincent, Charles; Hogan, Helen; Peters, Michele Abstract​ Objectives The aim of this article… ## [An Open Letter to BACME re ME/CFS Guide to Therapy 2025](https://s4me.info/threads/an-open-letter-to-bacme-re-me-cfs-guide-to-therapy-2025.48904/) _2026-08-21 · Jonathan Edwards · Science for ME_ An Open Letter to British Association for Clinicians in ME/CFS in Response to the Document ‘Guide to Therapy’, 2025 Jonathan CW Edwards, Professor in Connective Tissue Medicine\* Dr Michelle Bull, Chartered Physiotherapist Joan Crawford, Chartered Counselling Psychologist \*Correspondence to JO.EDWARDS@UCL.AC.UK Introduction NICE Guideline NG206 (NICE, 2021) proposed a major change in management for… ## [Deep Sequencing of BCR Heavy Chain Repertoires in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2025, Ryback et al](https://s4me.info/threads/deep-sequencing-of-bcr-heavy-chain-repertoires-in-myalgic-encephalomyelitis-chronic-fatigue-syndrome-2025-ryback-et-al.42142/) _2026-08-21 · Nightsong · Science for ME_ Now published: see here Abstract: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a common and debilitating chronic illness of unknown aetiology. Chronic infection and autoimmune responses have been proposed as two mechanisms that potentially underlie the pathogenesis of ME/CFS. To explore these disease hypotheses, we characterised the antigen-specific receptors of B cells using… ## [Beyond diagnosis in general practice: Predictive processing, a novel framework for persistent physical symptoms 2026 van Boven et al](https://s4me.info/threads/beyond-diagnosis-in-general-practice-predictive-processing-a-novel-framework-for-persistent-physical-symptoms-2026-van-boven-et-al.51884/) _2026-08-21 · Andy · Science for ME_ Background​ Persistent physical symptoms are among the most common and challenging presentations in general practice, whether investigations are normal or reveal pathology insufficient to explain their severity. Patients and clinicians alike often experience these presentations as a dead end. Traditional biomedical models assume that symptoms passively reflect structural pathology, and that normal… ## [Circulating MicroRNA ratios as diagnostic biomarkers for long COVID with an independent validation cohort, 2026, Han et al.](https://s4me.info/threads/circulating-microrna-ratios-as-diagnostic-biomarkers-for-long-covid-with-an-independent-validation-cohort-2026-han-et-al.51938/) _2026-08-21 · Chandelier · Science for ME_ Circulating MicroRNA ratios as diagnostic biomarkers for long COVID with an independent validation cohort Spoiler: Authors Han, Emilie; Lukovic, Dominika; Müller-Zlabinger, Katrin; Hasimbegovic, Ena; Schefberger, Katharina; Kastner, Nina; Spannbauer, Andreas; Riesenhuber, Martin; Nitsche, Christian; Zelniker, Thomas A.; Gyöngyösi, Mariann; Hamzaraj, Kevin Abstract​ Background​ Long COVID is a… ## [Cardiovascular, Renal, and Pulmonary Risks of Long COVID: A Retrospective Cohort Study Stratified by Age and Sex, 2026, Pradeep et al.](https://s4me.info/threads/cardiovascular-renal-and-pulmonary-risks-of-long-covid-a-retrospective-cohort-study-stratified-by-age-and-sex-2026-pradeep-et-al.51939/) _2026-08-21 · Chandelier · Science for ME_ Cardiovascular, Renal, and Pulmonary Risks of Long COVID: A Retrospective Cohort Study Stratified by Age and Sex Spoiler: Authors Pradeep, Akash; Ramalho, Izola; Carvour, Martha L.; Sivamurugan, Srija M.; Singh, Upinder; Comellas, Alejandro P.; Dayal, Sanjana Abstract​ Background​ A substantial proportion of patients with acute COVID‐19 develop postacute sequelae of SARS‐CoV‐2 infection (Long… ## [Loneliness, social isolation, and accumulation of chronic conditions: A nationwide longitudinal study in Japan, 2026, Ito et al.](https://s4me.info/threads/loneliness-social-isolation-and-accumulation-of-chronic-conditions-a-nationwide-longitudinal-study-in-japan-2026-ito-et-al.51925/) _2026-08-21 · Chandelier · Science for ME_ Loneliness, social isolation, and accumulation of chronic conditions: A nationwide longitudinal study in Japan Spoiler: Authors Ito, Hiroshi; Okaya, Shuichi; Watanabe, Tatsuya; Zheng, Ying-Fang; Shimojo, Nobutake; Kawano, Satoru; Tabuchi, Takahiro Abstract​ Background​ Loneliness and social isolation are related but distinct dimensions of social disconnection, but their longitudinal associations… ## [Aripiprazole - Abilify](https://s4me.info/threads/aripiprazole-abilify.16972/) _2026-08-21 · Jim001 · Science for ME_ This thread brings together posts from three previous threads on the topic of Aripirazole I heard a while back that Stanford is using a low dose of the anti-psychotic Abilify as a neuro antiinflammatory and finding some success. Are any of you here using Abilify, in either low dose or standard dose? How do you find it affects your ME, if at all? I'm thinking about asking my doctor about it when… ## [Article: Warning after woman dies due to 'lack of dieticians' in NHS mental health hospital](https://s4me.info/threads/article-warning-after-woman-dies-due-to-lack-of-dieticians-in-nhs-mental-health-hospital.51904/) _2026-08-21 · Sly Saint · Science for ME_ More vulnerable people could die because of a shortage of dietitians at NHS psychiatric hospitals , a coroner has warned. Neeshat Dalal, 69, was admitted to the Heathfield ward at the NHS Eastbourne District General Hospital on November 30, 2022, after being sectioned under the Mental Health Act for severe depression. She had struggled to eat and drink for around two months prior to her admission,… ## [New Zealand: ANZMES](https://s4me.info/threads/new-zealand-anzmes.15144/) _2026-08-21 · Andy · Science for ME_ Copied post Watching at the moment but I think it should be an interesting watch. Professor Warren Tate spoke at the ANZMES Annual General Meeting, which was held on 11th of November 2017. Professor Tate updated everyone on his current research that he is undertaking into ME/CFS which show some very promising results linking his research very closely with other research that is being carried out…