Campaigning for the service model we all need - one which doesn’t make us worse

Something I’ve been thinking about. And we’ve discussed in bits elsewhere. But thought a thread may be useful (edit: title changed to reflect the aims a bit better and be less clickbaity). Slightly selfishly I think severe should be the focus of campaigns and lobbying but also think there is a practical point of differentiation here. Something which makes ME/CFS stand apart. Loads of conditions…