# haea (audio feeds) — RSS Amplifier Recent posts from the 1 feeds in the RSS Amplifier directory that cover haea. Page: Feed: --- ## [Stronger Together: One Family's HAE Journey](https://podcasters.spotify.com/pod/show/haespeaks/episodes/Stronger-Together-One-Familys-HAE-Journey-e3mjvp3) _2026-08-01 · US HAEA · HAE Speaks_ In this month's episode of the HAE Speaks Podcast, the Warner-Mukes family shares their journey of living with Hereditary Angioedema (HAE) together. From navigating diagnosis and treatment to supporting one another through the challenges of daily life, they offer an honest conversation about what it means to face HAE as a family. Through their shared experiences, listeners will gain insight into… [Listen](https://anchor.fm/s/1f40aca8/podcast/play/123387107/https%3A%2F%2Fd3ctxlq1ktw2nl.cloudfront.net%2Fstaging%2F2026-6-27%2F428705622-44100-2-17c9f37c20df.mp3) ## [Summer Safety Tips with the HAEA Health Team](https://podcasters.spotify.com/pod/show/haespeaks/episodes/Summer-Safety-Tips-with-the-HAEA-Health-Team-e3kjohq) _2026-06-10 · US HAEA · HAE Speaks_ Join HAEA Director of Health & Research Services, Troyce Venturella, and HAEA Health Services Manager, Mandy Granat, as they discuss important summer safety considerations for individuals and families living with HAE. The conversation is designed to help the HAEA community stay safe, healthy, and prepared while enjoying summer activities with family and friends! Thank you to our 2026 Sponsors:… [Listen](https://anchor.fm/s/1f40aca8/podcast/play/121282554/https%3A%2F%2Fd3ctxlq1ktw2nl.cloudfront.net%2Fstaging%2F2026-5-10%2F425879059-44100-2-a6c25dd2bf3b1.mp3) ## [Roundtable with the HAEA CEO – A Conversation with KalVista’s Chief Commercial Officer](https://podcasters.spotify.com/pod/show/haespeaks/episodes/Roundtable-with-the-HAEA-CEO--A-Conversation-with-KalVistas-Chief-Commercial-Officer-e3jan7i) _2026-05-13 · US HAEA · HAE Speaks_ In this new HAE Speaks Podcast series, Roundtable with the CEO , HAEA CEO & Chairman of the Board, Tony Castaldo, sits down with Nicole Sweeny, Chief Commercial Officer at KalVista Pharmaceuticals. Tony and Nicole discuss KalVista’s mission and aspirations for the future health of the HAEA community. They also address EKTERLY® , a newly approved oral, on-demand HAE treatment option, and provide… [Listen](https://anchor.fm/s/1f40aca8/podcast/play/119937714/https%3A%2F%2Fd3ctxlq1ktw2nl.cloudfront.net%2Fstaging%2F2026-4-13%2F424083068-44100-2-9192f244e2276.mp3) ## [Perspectives from a Mother and Daughter with HAE](https://podcasters.spotify.com/pod/show/haespeaks/episodes/Perspectives-from-a-Mother-and-Daughter-with-HAE-e3j3c24) _2026-05-08 · US HAEA · HAE Speaks_ In this episode of HAE Speaks, Cheryl and her daughter Leah share their powerful journey living with hereditary angioedema (HAE) across generations. Together, they open up about navigating diagnosis, managing life with HAE, and the unique perspective of both a parent and child living with the condition. They also highlight the importance of advocacy, both within the healthcare system and the… [Listen](https://anchor.fm/s/1f40aca8/podcast/play/119696900/https%3A%2F%2Fd3ctxlq1ktw2nl.cloudfront.net%2Fstaging%2F2026-4-8%2F8e9be4e0-18d9-e97f-9a53-53552b81f590.m4a) ## [Supporting Adult Scholars in the HAE Community: Tina's Story](https://podcasters.spotify.com/pod/show/haespeaks/episodes/Supporting-Adult-Scholars-in-the-HAE-Community-Tinas-Story-e3fl9lo) _2026-02-26 · US HAEA · HAE Speaks_ In this episode, we hear from Tina S., an individual living with HAE and an adult recipient of the Pam King HAEA Scholarship. Tina shares her journey, the impact of the scholarship, and how educational support can make a difference for individuals affected by HAE, regardless of age or stage of life. Learn more about the HAEA Scholarships by visiting: https://www.haea.org/pages/p/scholarships Thank… [Listen](https://anchor.fm/s/1f40aca8/podcast/play/116089976/https%3A%2F%2Fd3ctxlq1ktw2nl.cloudfront.net%2Fstaging%2F2026-1-26%2F418882381-44100-2-0c874b44abc8d.mp3) ## [Don't tough it out: Flip the Switch on HAE Attacks](https://podcasters.spotify.com/pod/show/haespeaks/episodes/Dont-tough-it-out-Flip-the-Switch-on-HAE-Attacks-e3etgvd) _2026-02-13 · US HAEA · HAE Speaks_ Dr. Andrew Smith and Craig, an individual living with HAE, share insights on recognizing HAE attacks, understanding response strategies, and navigating day-to-day management. Through both clinical perspective and personal experience, they explore why timely response matters and how education can empower the HAE community. Together, they discuss why you don’t have to “tough it out,” how timely… [Listen](https://anchor.fm/s/1f40aca8/podcast/play/115311021/https%3A%2F%2Fd3ctxlq1ktw2nl.cloudfront.net%2Fstaging%2F2026-1-13%2F418068803-44100-2-d3563d563b795.mp3) ## [Episode 60: End of Year Legislative Update](https://podcasters.spotify.com/pod/show/haespeaks/episodes/Episode-60-End-of-Year-Legislative-Update-e3cgbt0) _2025-12-17 · US HAEA · HAE Speaks_ In this month's HAE Speaks Podcast episode, welcome back Dane Christiansen for a comprehensive end-of-year legislative update. Dane breaks down the key policy developments, federal priorities, and advocacy efforts that shaped 2025, and what they mean for the HAE community moving into the new year. Thank you to our sponsors: CSL Behring, IONIS Pharmaceuticals, and Pharvaris [Listen](https://anchor.fm/s/1f40aca8/podcast/play/112782688/https%3A%2F%2Fd3ctxlq1ktw2nl.cloudfront.net%2Fstaging%2F2025-11-17%2F414575991-44100-2-6dc7a07de2d32.mp3) ## [Episode 59: What’s next for Hereditary Angioedema - What You Need to Know](https://podcasters.spotify.com/pod/show/haespeaks/episodes/Episode-59-Whats-next-for-Hereditary-Angioedema---What-You-Need-to-Know-e3buc2c) _2025-12-05 · US HAEA · HAE Speaks_ This episode re-visits the HAEA National Summit session from HAE Expert and US HAEA Medical Advisory Board Member, Dr. Marc Riedl, as he offers a crucial look at the future of HAE care. The discussion focuses on the rapidly advancing treatment landscape, covering the latest novel therapies in development, and how these advances aim to improve treatment efficacy, convenience, and quality of life… [Listen](https://anchor.fm/s/1f40aca8/podcast/play/112193036/https%3A%2F%2Fd3ctxlq1ktw2nl.cloudfront.net%2Fstaging%2F2025-11-5%2F413819087-44100-2-85c37348b1fef.mp3) ## [Episode 58: 10 Must-Ask Insurance Questions for HAE](https://podcasters.spotify.com/pod/show/haespeaks/episodes/Episode-58-10-Must-Ask-Insurance-Questions-for-HAE-e39aljd) _2025-10-09 · US HAEA · HAE Speaks_ In this episode, HAEA Nurse Case Managers, Troyce Venturella and Mandy Granat, share their 10 must-ask insurance questions for people living with HAE. Learn how to better understand your coverage, prepare for renewals, and advocate for the care you need. Navigating insurance can be challenging, but you don’t have to do it alone! [Listen](https://anchor.fm/s/1f40aca8/podcast/play/109450285/https%3A%2F%2Fd3ctxlq1ktw2nl.cloudfront.net%2Fstaging%2F2025-9-9%2F408971655-44100-2-222559f8f4633.mp3) ## [Sync bookmarks across every browser (Sponsored)](https://crawlproof.com/a/huJoEnz2jZhv) _2025-10-09 · **Sponsored**_ Two-way sync across Chrome, Firefox and Safari; built-in ad and tracker blocker. ## [Episode 56: Understanding Medicare Enrollment](https://podcasters.spotify.com/pod/show/haespeaks/episodes/Episode-56-Understanding-Medicare-Enrollment-e374vs0) _2025-08-21 · US HAEA · HAE Speaks_ In this episode, HAE Health Services Manager Troyce Venturella sits down with Marie , an individual living with HAE who has navigated the complexities of Medicare enrollment firsthand. Together, they discuss the key steps, challenges, and considerations in selecting the right Medicare plan, offering valuable insights for others in the HAE community as they make important healthcare decisions. [Listen](https://anchor.fm/s/1f40aca8/podcast/play/107167040/https%3A%2F%2Fd3ctxlq1ktw2nl.cloudfront.net%2Fstaging%2F2025-7-21%2F406051252-44100-2-9c8f488a40136.mp3)