# ehlers-danlos syndrome (blogs) — RSS Amplifier Recent posts from the 6 feeds in the RSS Amplifier directory that cover ehlers-danlos syndrome. Page: Feed: --- ## [MCAS and Eating Disorders: When “Just Eat” Can Make Things Worse](https://hypermobilitymd.substack.com/p/mcas-and-eating-disorders-when-just) _2026-08-24 · The Bendy Bulletin_ How hEDS, POTS, MCAS, and ARFID can collide in eating disorder treatment, and why physical reactions to food need to be taken seriously ## [Can a Bad Sunburn Trigger an Immune Flare?](https://hypermobilitymd.substack.com/p/can-a-bad-sunburn-trigger-an-immune) _2026-08-17 · The Bendy Bulletin_ A patient recently asked me this question, and it gets at something much bigger about immune flares, triggers, and why some bodies have a harder time returning to baseline. ## [How to Use AI to Be a Better Patient](https://hypermobilitymd.substack.com/p/how-to-use-ai-to-be-a-better-patient) _2026-08-16 · Dr. Linda Bluestein, MD · The Bendy Bulletin_ How to ask better questions, communicate your symptoms, and get more out of your healthcare without replacing your doctor ## [How AI Has Made Me a Better Doctor](https://hypermobilitymd.substack.com/p/how-ai-has-made-me-a-better-doctor) _2026-08-10 · The Bendy Bulletin_ How I use artificial intelligence in clinical practice to improve patient care, organize complex medical information, and strengthen the physician-patient relationship. ## [How to Improve the Chances of Getting Useful MCAS Test Results](https://hypermobilitymd.substack.com/p/how-to-improve-the-chances-of-getting) _2026-08-03 · The Bendy Bulletin_ A practical guide to timing, specimen handling, and common pitfalls that can make mast cell mediator testing more or less informative. ## [Summer Break(-ish)](https://www.lianabrooks.com/summer-break-ish/) _2026-08-03 · Liana Brooks · Liana Brooks_ I have always loved summer. Other people may not love the heat or the beaches, but I always have. Summer breaks? Let’s just say we’ve had a rough start… my very first summer break after my very first year of school started with me getting chicken pox (something you can... Continue reading ## [Confirmation Bias: When the First Explanation Isn't the Whole Story](https://hypermobilitymd.substack.com/p/confirmation-bias-when-the-first) _2026-07-27 · The Bendy Bulletin_ Better diagnostic thinking for patients, clinicians, and AI. ## [I Built a Private Genomics Study with Stoffel MPC](https://vishakh.blog/2026/07/21/i-built-a-private-genomics-study-with-stoffel-mpc/) _2026-07-22 · vishakh64c8d901e3 · Vishakh's Blog_ Most genomic studies begin by asking participants to upload one of the most identifying and irrevocable pieces of data they own, their DNA. I continue to investigate whether multi-party computation can offer a different model, one in which a study can produce useful results without anyone collecting the participants’ genomes in the first place. That \[…\] ## [EDS & HSD Through the Dermatologist's Lens](https://hypermobilitymd.substack.com/p/eds-and-hsd-through-the-dermatologists) _2026-07-20 · The Bendy Bulletin_ A guest-written edition from Dr. Sonal Choudhary ## [How I Wish Patients Would Use AI Before a Medical Appointment](https://hypermobilitymd.substack.com/p/how-i-wish-patients-would-use-ai) _2026-07-13 · The Bendy Bulletin_ Plus, download my AI Medical Appointment Toolkit ## [Non-custodial Crypto Payments & Escrow (Sponsored)](https://crawlproof.com/a/uojvbcN8pNHD) _2026-07-13 · **Sponsored**_ Accept multi-chain crypto with trustless escrow, instant confirmations, and no KYC ## [MCAS & Nutrition: When Your Safe Food List Keeps Getting Smaller](https://hypermobilitymd.substack.com/p/mcas-and-nutrition-when-your-safe) _2026-07-06 · The Bendy Bulletin_ Evidence-informed nutrition strategies for MCAS, including food reactions, elimination diets, and rebuilding food tolerance. ## [Should You Stop All Supplements Before Surgery?](https://hypermobilitymd.substack.com/p/should-you-stop-all-supplements-before) _2026-06-29 · The Bendy Bulletin_ Finding the Balance Between Safety and Stability for Patients with EDS, MCAS, POTS, Migraine, Chronic Pain, and Other Complex Conditions ## [The Stories Of Clouds](https://www.lianabrooks.com/the-stories-of-clouds/) _2026-06-26 · Liana Brooks · Liana Brooks_ Sometimes (a lot of times) life gets a little bit chaotic. I almost wrote “my life gets a little bit chaotic” but I honestly don’t know anyone whose life isn’t a little wild at the moment. We’re all juggling jobs, plans, goals, home life, and whatever nonsense our local communities... Continue reading ## [MCAS-Friendly Cleaning: How to Reduce Triggers Without Making Yourself Sicker](https://hypermobilitymd.substack.com/p/mcas-friendly-cleaning-how-to-reduce) _2026-06-22 · The Bendy Bulletin_ Practical physician-recommended strategies to reduce fragrance, mold, dust, and chemical exposures at home for people with MCAS, EDS, HSD, POTS, Long COVID, and related conditions. ## [What Did You Say About Drumlines?](https://www.lianabrooks.com/what-did-you-say-about-drumlines/) _2026-06-12 · Liana Brooks · Liana Brooks_ Did I ever tell you I was a drummer? Way back in the day my parents decided that music was part of a well-rounded education. As any of you who have been stuck in a car with me when my favorite song came on know… I’m tone deaf. Like, super,... Continue reading ## [The Rise Of AI](https://www.lianabrooks.com/the-rise-of-ai/) _2026-06-08 · Liana Brooks · Liana Brooks_ The idea of Artificial Intelligence is almost as old as modern sci-fi as a genre. Humans are a social species. Not only do we thrive on having a group with us, we required a group of some kind. A pack, if you will. Our young can’t survive without care. It... Continue reading ## [Where To Find Me Online](https://www.lianabrooks.com/where-to-find-me-online/) _2026-06-03 · Liana Brooks · Liana Brooks_ With the demise of Twitter and the rise of several other social media sites it’s hard to guess where your favorite authors will be. Some of us love Threads. Some love Bluesky. Some love Mastodon. Some of us have found other places to play or given up on the social... Continue reading ## [A Busy Year](https://www.lianabrooks.com/a-busy-year/) _2026-06-01 · Liana Brooks · Liana Brooks_ So… it’s been a minute since I blogged. The delay wasn’t intentional. It’s just been a wee bit busy over here. There’s been changes with the press, new books bouncing to my editor, and just a lot of chaos in general. I’m having trouble keeping track of which timezones all... Continue reading ## [PEA (Palmitoylethanolamide) as Supplement: Gaining in Popularity, And For Good Reason](https://healthmatrixnet.substack.com/p/pea-palmitoylethanolamide-as-supplement) _2026-05-27 · The Health Matrix · Dr.Gaby’s Substack_ Potentially key supplement for those with chronic pain, allergies, cognitive decline, insomnia, chronic fatigue/fibromyalgia, Ehlers-Danlos syndrome, Long COVID or POTS... ## [Beware of Pseudo-Science: In Defense of Melatonin](https://healthmatrixnet.substack.com/p/beware-of-pseudo-science-in-defense) _2026-04-05 · The Health Matrix · Dr.Gaby’s Substack_ Against cardiovascular disease, Ehlers-Danlos Syndrome and other conjunctive tissue anomalies (and for multiple other conditions too!) ## [Open directory of blogs (Sponsored)](https://crawlproof.com/a/mdWvz4zdkdxu) _2026-04-05 · **Sponsored**_ Drop URLs or OPML — get per-blog pages plus machine-readable JSON, OPML, text ## [The Fatal Mistake Behind Low Vitamin D Supplementation](https://healthmatrixnet.substack.com/p/the-fatal-mistake-behind-low-vitamin) _2026-01-06 · The Health Matrix · Dr.Gaby’s Substack_ Redressing "Darwin Awards" when it comes to vitamin D supplementation ## [Happy Release Day to ALL I WANT FOR CHRISTMAS IS A MERMAID!](https://www.lianabrooks.com/happy-release-day-to-all-i-want-for-christmas-is-a-mermaid/) _2025-12-01 · Liana Brooks · Liana Brooks_ Today’s the day!!! ALL I WANT FOR CHRISTMAS IS A MERMAID is finally out! Today, you get to meet LJ! One of my most fight-y All I Want characters. When I say this book was a knockdown, drag out fist fight from Page 1, I mean it. It’s said with... Continue reading ## [High Heart Rate Variability at Night as a Red Alert](https://healthmatrixnet.substack.com/p/high-heart-rate-variability-at-night) _2025-12-01 · The Health Matrix · Dr.Gaby’s Substack_ The devil in the details when it comes to interpreting HRV ## [READ THIS! Book Club This Thursday (and more!)](https://www.lianabrooks.com/read-this-book-club-this-thursday-and-more/) _2025-11-19 · Liana Brooks · Liana Brooks_ ALL I WANT FOR CHRISTMAS IS A MERMAID is coming out in just a few weeks, and this Thursday (US time) I’m going to meet up with fellow author Gini Koch to talk about the ALL I WANT FOR CHRISTMAS series! If you haven’t read one of the ALL I... Continue reading ## [Rescue Remedies for the Hopeless - HBOT](https://healthmatrixnet.substack.com/p/rescue-remedies-for-the-hopeless) _2025-11-17 · The Health Matrix · Dr.Gaby’s Substack_ Hyperbaric Oxygenation Therapy saves the day ## [ALL I WANT FOR CHRISTMAS IS A MERMAID Cover Reveal!](https://www.lianabrooks.com/all-i-want-for-christmas-is-a-mermaid-cover-reveal/) _2025-10-20 · Liana Brooks · Liana Brooks_ Ta-da! It’s finally, FINALLY here! ALL I WANT FOR CHRISTMAS IS A MERMAID is finally heading out to all the usual book-buying hubs. Including your local bookstore! The ebook will filter out over the next two weeks, with the print editions filtering out by mid-November. The official release date... Continue reading ## [What's wrong with my immune system? When connective tissue inflammation 'explains the unexplainable'](https://healthmatrixnet.substack.com/p/whats-wrong-with-my-immune-system) _2025-10-05 · The Health Matrix · Dr.Gaby’s Substack_ Mast cell activation syndrome (MCAS) - An inflammatory condition and immunological disease characterized by mast cell dysregulation in connective tissue ## [Ehlers-Danlos Syndrome Shines Light on Our Most Sensory Organ](https://healthmatrixnet.substack.com/p/ehlers-danlos-syndrome-shines-light) _2025-09-06 · The Health Matrix · Dr.Gaby’s Substack_ Connective Tissue Disorders Also Key to Understanding 'Miracle Cures' ## [Plasmalogens - The Essential but Forgotten Supplement](https://healthmatrixnet.substack.com/p/plasmalogens-the-essential-but-forgotten) _2025-08-30 · The Health Matrix · Dr.Gaby’s Substack_ Tuning-up cell membranes in chronic inflammatory and degenerative dis-eases ## [All I Want For Christmas Is A Mermaid Is Off To The Editor!](https://www.lianabrooks.com/all-i-want-for-christmas-is-a-mermaid-is-off-to-the-editor/) _2025-08-20 · Liana Brooks · Liana Brooks_ ALL I WANT FOR CHRISTMAS IS A MERMAID is off to the editor! The next step is print proofs, aka ARCs (advance reader copies), a cover reveal, and posting the buy links. I have seen the cover art, and I’ve gotta say, I love it! Readers have noticed the slight... Continue reading ## [AI Summaries & Audio Briefings (Sponsored)](https://crawlproof.com/a/icoo0Jx0YLqR) _2025-08-20 · **Sponsored**_ Read AI summaries and listen to concise audio briefings for the latest stories. ## [Lessons from using FHE to build a Secure Consumer App](https://vishakh.blog/2025/08/06/lessons-from-using-fhe-to-build-a-secure-consumer-app/) _2025-08-07 · vishakh64c8d901e3 · Vishakh's Blog_ Fully homomorphic encryption (FHE) is a cryptographic technique which allows computation over encrypted data. This almost magical ability to allow third parties to process information without being able to see it has the potential to greatly enhance privacy and security of applications on the Internet. For the past year, my colleagues and I have been \[…\] ## [Short message from the failing Primary Health Care Front in the post COVID-19 era](https://healthmatrixnet.substack.com/p/short-message-from-the-failing-primary) _2025-07-09 · The Health Matrix · Dr.Gaby’s Substack_ Mirror website from https://health-matrix.net/ now on substack ## [Using MPC for Anonymous and Private DNA Analysis](https://vishakh.blog/2025/07/08/using-mpc-for-anonymous-and-private-dna-analysis/) _2025-07-08 · vishakh64c8d901e3 · Vishakh's Blog_ Earlier this year, Monadic DNA kicked off an experiment to demonstrate that people can access and analyze their genetic data with anonymity and privacy. Monadic DNA collected saliva samples from thirty encrypted genomics pioneers at an event in Denver. These participants later used a Web app to claim their genotyping results using a unique kit \[…\] ## [The Molecular Basis of Punctuated Equilibria aka “Punkeek”](https://scienceoveracuppa.com/2025/05/20/the-molecular-basis-of-punctuated-equilibria-aka-punkeek/) _2025-05-20 · Emily Casanova · Science Over a Cuppa_ A little update! I know it’s been an incredibly long time since I’ve posted on SoaC, primarily because I’ve been expanding my science communication on platforms like TikTok and Youtube. \[…\] ## [Using Ethereum for financial smart contracts](https://vishakh.blog/2024/12/03/using-ethereum-for-financial-smart-contracts/) _2024-12-03 · vishakh64c8d901e3 · Vishakh's Blog_ Note: This is a repost of a 2016 Medium article describing the first ever financial instrument developed for the Ethereum blockchain. See our deep dive for technical details. It’s still too early to tell how relevant blockchains are for finance. To get some insight, we modeled a financial derivative contract on the Ethereum blockchain to \[…\] ## [Empiricism and Scientific Change in Judea Pearl’s ‘The Book of Why’](https://vishakh.blog/2024/11/20/empiricism-and-scientific-change-in-judea-pearls-the-book-of-why/) _2024-11-21 · vishakh64c8d901e3 · Vishakh's Blog_ (Originally posted in March 2021 at https://medium.com/@vishakh/empiricism-and-scientific-change-in-judea-pearls-the-book-of-why-5e77c02a9d8b) Edit: A brief response from Prof. Pearl to this blog post may be found at https://twitter.com/yudapearl/status/1377127158926041089. Several years ago, as a newly-minted college freshman, I learned how the eighteenth century empiricist philosopher David Hume… ## [Calcifediol - Vitamin D's Active Molecule and its Role in Long COVID, Case Study](https://healthmatrixnet.substack.com/p/calcifediol-vitamin-ds-active-molecule-and-its-role-in-long-covid-case-study) _2024-11-16 · Dr.Gaby · Dr.Gaby’s Substack_ The following case is that of a 49-year-old woman, who we will call MV, and who benefited enormously from the active form of vitamin D, calcifediol, to relieve her disabling symptoms following COVID-19 mRNA vaccination. ## [Major Breakthrough: A New Potential Biomarker for hEDS/HSD](https://scienceoveracuppa.com/2024/09/17/major-breakthrough-a-new-potential-biomarker-for-heds-hsd/) _2024-09-17 · Emily Casanova · Science Over a Cuppa_ Below is my coverage on Tiktok on this major new discovery published just a few weeks ago. Scientists have found a potential biomarker that’s present in both Hypermobile Ehlers-Danlos Syndrome \[…\]