# chd (podcasts) — RSS Amplifier Recent posts from the 2 feeds in the RSS Amplifier directory that cover chd. Page: Feed: --- ## [The Missing Ruler: A Free Tool to Grade the Quality of CHD Information](https://betweenthebeats.substack.com/p/chd-health-information-quality-scorecard) _2026-08-17 · Between the Beats · Between the Beats_ An instrument for grading health information on congenital heart disease has existed since 1998. Somehow it never made it to us, the people who benefit from it most. ## [🔬 Your Child's Heart Surgery, Decoded.](https://betweenthebeats.substack.com/p/open-heart-surgery-chd-kids-decoded) _2026-08-10 · Between the Beats · Between the Beats_ A kitchen-table guide to open-heart surgery for kids with congenital heart disease: why they stop the heart, who needs the heart-lung machine, and what recovery looks like. ## [The Pulse Weekly Roundup: July 27-31, 2026](https://betweenthebeats.substack.com/p/the-pulse-weekly-roundup-july-27) _2026-08-03 · Between the Beats · Between the Beats_ Blood Vessels in Minutes, Cath Labs Without Radiation, and the Zip Code That Decides Your Survival ## ["Give Me the Numbers.” What 1,297 CHD Parents Unilaterally Declared About the Information They Actually Need](https://betweenthebeats.substack.com/p/give-me-the-numbers) _2026-07-28 · Between the Beats · Between the Beats_ The research proves that parents of children with congenital heart disease want the hard facts, not mere reassurances. Why "less is more" gets it backwards, and what real translation looks like. ## [Tetralogy Of Fallot Repair Isn't the Finish Line: What Families Need to Know About the Long Term](https://betweenthebeats.substack.com/p/tetralogy-of-fallot-explained-long-term) _2026-07-20 · Between the Beats · Between the Beats_ TOF repair is a starting gun, not a finish line. The survival stats, the valve that leaks, the quality-of-life research — decoded for heart families. ## [The Pulse Weekly Roundup: July 13-17, 2026](https://betweenthebeats.substack.com/p/the-pulse-weekly-roundup-july-13-17-2026) _2026-07-17 · Between the Beats · Between the Beats_ There's a striking narrative thread this week: Jonathan King's story, the FUEL FALD data, and the septation procedure form a SV triptych — the problem, a potential treatment, and potential alt pathway ## [The Pulse Weekly Roundup -- July 6-10, 2026](https://betweenthebeats.substack.com/p/the-pulse-weekly-roundup-july-6-10-2026) _2026-07-14 · Between the Beats · Between the Beats_ Quite the range this week — from access equity in Hawai'i and Malaysia, to the medication burden nobody's mapping for kids, to a headline that got a full source-chain autopsy by yours truly! ## [🕵🏻‍♀️ DEBUNKED: The Telephone Game - CHD Edition.](https://betweenthebeats.substack.com/p/chd-air-pollution-headline-debunked) _2026-07-10 · Between the Beats · Between the Beats_ How a 2% Risk Factor Suddenly Became the “Primary Catalyst” for CHD ## [🔬DECODED: Pediatric Medical Trauma Stress](https://betweenthebeats.substack.com/p/pediatric-medical-traumatic-stress) _2026-07-06 · Between the Beats · Between the Beats_ What Medical Trauma Actually Is — and Why Parents of CHD Children Live Inside It ## [DECODED: The “Failing Fontan”](https://betweenthebeats.substack.com/p/failing-fontan-explained) _2026-06-24 · Between the Beats · Between the Beats_ What the term means, what it doesn’t, and why Fontan care is really lifelong system management. ## [Hire AI-Powered Freelancers Fast (Sponsored)](https://crawlproof.com/a/DPrLe3rM4PTC) _2026-06-24 · **Sponsored**_ Browse and hire skilled professionals using AI tools — free to post, free to apply. ## [The Missing Link Between Your Child’s Gut and Their Brain](https://betweenthebeats.substack.com/p/chd-gut-brain-connection) _2026-06-17 · Between the Beats · Between the Beats_ Your child’s brain development has been shaped by factors mostly out of your hands. The gut microbiome might be the first one that isn’t. ## [🔎 DECODED: Perfusion](https://betweenthebeats.substack.com/p/decoded-perfusion-chd) _2026-06-09 · Between the Beats · Between the Beats_ This one concept connects your CHD child's liver results, exercise tolerance, brain development, and half of what the cardiologist monitors. Here's how to see it. ## [Join the Between The Beats subscriber chat!](https://betweenthebeats.substack.com/p/join-the-between-the-beats-subscriber) _2026-06-04 · Between the Beats · Between the Beats_ A private space for us to connect and share ## [🔬DECODED: The CHD Gut Microbiome](https://betweenthebeats.substack.com/p/gut-microbiome-congenital-heart-disease) _2026-06-03 · Between the Beats · Between the Beats_ What parents need to know about the science connecting their CHD child's heart, gut, and brain development. ## [Failure to Launch?](https://betweenthebeats.substack.com/p/failure-to-launch-chd-transition-pediatric-adult-care) _2026-05-29 · Between the Beats · Between the Beats_ Transitioning From Pediatric to Adult CHD Care (And What You Can Start Doing About It Now) ## [📰 FRESH SCIENCE: On The First Feed of Critical-CHD Newborns](https://betweenthebeats.substack.com/p/new-study-on-first-feed-for-critical-chd-babies) _2026-05-27 · Between the Beats · Between the Beats_ New research shows parent presence is 5x more powerful than any other factor at a Critical-CHD baby's first feed. Fresh Science breaks down what it means for your family. ## [Do Pulse Oximeters Work the Same on Everyone?](https://betweenthebeats.substack.com/p/pulse-oximeter-skin-tone-chd-babies) _2026-05-25 · Between the Beats · Between the Beats_ Skin Tone, Accuracy, and Your CHD Baby ## [Clockwork Hearts - A CHD Community Call-to-Action](https://betweenthebeats.substack.com/p/clockwork-hearts) _2026-05-19 · Between the Beats · Between the Beats_ The CHD community doesn’t need a single voice — it needs to hear the one it already has and use the mechanisms it has already built. ## [CHD and Growth Failure — Or, The Second-Gear Baby](https://betweenthebeats.substack.com/p/chd-growth-failure-energy-expenditure-heart-babies) _2026-05-07 · Between the Beats · Between the Beats_ Your heart baby’s body is working harder than you think, burning more fuel than you’d expect, and keeping less of it than it needs. Here’s what the research says. ## [Yelling From the Rooftop - Part 2](https://betweenthebeats.substack.com/p/yelling-from-the-rooftop-part-2) _2026-05-06 · Between the Beats · Between the Beats_ How one researcher's fraud nearly silenced the most promising therapy for HLHS babies — and what a money trail through tax filings reveals about who really decides which children get saved. ## [One platform, from silicon to agent (Sponsored)](https://crawlproof.com/a/6T9QLcUgTVyC) _2026-05-06 · **Sponsored**_ Serverless inference plus Inference Router to optimize cost and latency at scale. ## A Parent’s Guide To CHD, Neurodevelopment, And Resilience _2025-12-28 · Heart to Heart with Anna_ Send us Fan Mail What if the most powerful lever for your child’s growth isn’t another appointment, but how you care for yourself? We sit down with neuropsychologist Dr. Dawn Ilardi to connect the dots between CHD, early brain development, medical trauma, and the everyday choices that help families thrive. From prenatal influences on cognition and behavior to the protective force of stable… [Listen](https://www.buzzsprout.com/62761/episodes/18420442-a-parent-s-guide-to-chd-neurodevelopment-and-resilience.mp3) ## Connecting Hearts: The Science and Stories of Congenital Heart Innovation _2025-12-01 · Heart to Heart with Anna_ Send us Fan Mail A month of movement—across states, across continents, and across ideas—shapes this episode of Heart to Heart with Anna , where personal connection meets the frontiers of heart medicine. We begin with gratitude, travel, and family updates, then explore two breakthroughs shaping the future of congenital heart care: a major open-access study using whole-genome sequencing to forecast… [Listen](https://www.buzzsprout.com/62761/episodes/18277376-connecting-hearts-the-science-and-stories-of-congenital-heart-innovation.mp3) ## ECMO To Ironman: Elmar Sprink's Story about Life After Heart Transplant _2025-11-08 · Heart to Heart with Anna_ Send us Fan Mail What does it take to learn to sit again, then stand, then chase the horizon at the Ironman World Championship? We sit down with endurance athlete and keynote speaker Elmar Sprink to trace the steps from sudden cardiac arrest and seven months on ECMO to a disciplined, data‑driven comeback fueled by routine, empathy, and stubborn hope. Elmar opens up about the invisible work of… [Listen](https://www.buzzsprout.com/62761/episodes/18153962-ecmo-to-ironman-elmar-sprink-s-story-about-life-after-heart-transplant.mp3) ## From Antidepressants To Arrhythmias: A Candid Guide To Drug‑Induced Long QT _2025-10-21 · Heart to Heart with Anna_ Send us Fan Mail We share community updates and new events, then sit down with Ayrton Beatty to unpack how an antidepressant triggered Long QT syndrome, what symptoms to watch for, and the everyday tactics that keep them safe while honoring Edward’s memory. The conversation blends hard science, lived experience, and practical steps anyone can use to advocate with confidence. • Red Hat Society join… [Listen](https://www.buzzsprout.com/62761/episodes/18047256-from-antidepressants-to-arrhythmias-a-candid-guide-to-drug-induced-long-qt.mp3) ## CHD Connects Hearts: A Grandmother’s Mission to Unite Us All _2025-09-29 · Heart to Heart with Anna_ Send us Fan Mail What happens when a grandmother's love collides with a broken system? When Christy Pace's grandson Hunter was diagnosed with Hypoplastic Left Heart Syndrome before birth, she found herself thrust into an unexpected role – not just as a supportive grandmother, but eventually as a visionary determined to transform how the CHD community connects. Our conversation pulls back the… [Listen](https://www.buzzsprout.com/62761/episodes/17909446-chd-connects-hearts-a-grandmother-s-mission-to-unite-us-all.mp3) ## Half a Heart, Whole Stories: Steven Hutchison, Jessica Cowin, and More _2025-09-10 · Heart to Heart with Anna_ Send us Fan Mail Steven Hutchison has defied expectations his entire life. Born with hypoplastic left heart syndrome (HLHS) nearly four decades ago, he is now a 38-year-old husband, father of three, and full-time worker who approaches each day with remarkable perspective and gratitude. Diagnosed at two weeks old, Steven underwent staged surgeries including the Glenn and Fontan procedures, and now… [Listen](https://www.buzzsprout.com/62761/episodes/17819099-half-a-heart-whole-stories-steven-hutchison-jessica-cowin-and-more.mp3) ## Voices of Strength: Tyler Šajdák's HLHS Journey and Advocacy in the CHD Community _2025-08-28 · Heart to Heart with Anna_ Send us Fan Mail Tyler Šajdák wasn't supposed to grow up. Born with hypoplastic left heart syndrome in 1993, he was part of a generation receiving experimental surgeries with uncertain outcomes. Today, at 31, he works as an academic advisor, pursues a master's degree, and serves as a powerful advocate for the adult congenital heart defect community. "I've been told by people that just by looking… [Listen](https://www.buzzsprout.com/62761/episodes/17743990-voices-of-strength-tyler-sajdak-s-hlhs-journey-and-advocacy-in-the-chd-community.mp3) ## Creating Change: The Heart Behind Embers of Love _2025-08-01 · Heart to Heart with Anna_ Send us Fan Mail What happens when a tiny heart warrior inspires a movement of love and advocacy? In this powerful conversation, I sit down with Haley Graham, whose daughter Emberly Dawn was born with multiple heart defects, including a rare Taussig-Bing anomaly. Haley takes us through the emotional journey from that first concerning ultrasound to the founding of Embers of Love, a nonprofit that's… [Listen](https://www.buzzsprout.com/62761/episodes/17597627-creating-change-the-heart-behind-embers-of-love.mp3) ## From Cape Town to Courage: Navigating CHD in South Africa _2025-07-30 · Heart to Heart with Anna_ Send us Fan Mail What happens when your child needs heart surgery, but the operation keeps getting postponed? How do you navigate a complex healthcare system while still supporting other families going through similar struggles? Candice Swartland takes us deep into this reality from Cape Town, South Africa. Candice's journey began when her son Riley was diagnosed with Tetralogy of Fallot shortly… [Listen](https://www.buzzsprout.com/62761/episodes/17585670-from-cape-town-to-courage-navigating-chd-in-south-africa.mp3) ## [profullstack on Ko‑fi (Sponsored)](https://crawlproof.com/a/53D0Vq5mNGsL) _2025-07-30 · **Sponsored**_ Open the creator's Ko‑fi page. ## One Voice: United Against Congenital Heart Disease with Monique Kemp _2025-07-01 · Heart to Heart with Anna_ Send us Fan Mail Monique Kemp's world turned upside down when her unborn son was diagnosed with an interrupted aortic arch at seven months of pregnancy. What followed was a harrowing journey through six open-heart surgeries, months of hospitalization, and the birth of something unexpected – a powerful vision for supporting other families facing similar challenges. From those early days sitting… [Listen](https://www.buzzsprout.com/62761/episodes/17428148-one-voice-united-against-congenital-heart-disease-with-monique-kemp.mp3)