# caregiver (news sources) — RSS Amplifier Recent posts from the 2 feeds in the RSS Amplifier directory that cover caregiver. Page: Feed: --- ## [MRI measurements of facial nerve may detect motor neuron damage in SMA](https://smanewstoday.com/news/mri-facial-nerve-detect-motor-neuron-damage-sma/) _2026-08-21 · Margarida Maia, PhD · SMA News Today – The Web's Daily Resource for Spinal Muscular Atrophy News_ MRI measurements of the facial nerve, which controls the muscles used for facial expression, may offer a simple way to detect damage to motor neurons — nerve cells that control movement — in adults with spinal muscular atrophy (SMA), according to a study. They may also reflect physical weakness even when facial weakness is not \[…\] The post MRI measurements of facial nerve may detect motor neuron… ## [Large study ties early depression symptoms to higher Parkinson’s risk](https://parkinsonsnewstoday.com/news/large-study-links-early-depression-symptoms-higher-parkinsons-risk/) _2026-08-21 · Andrea Lobo · Parkinson's News Today – The Web's Daily Resource for Parkinson's News_ People with depressive symptoms may have higher odds of developing Parkinson’s disease, a large study suggests, with the researchers noting a potentially greater risk among those with stronger genetic susceptibility to the neurological condition. The findings also point to changes in fat metabolism — one of several “metabolic disturbances” that the team says has been \[…\] The post Large study ties… ## [Living with SMA requires resourcefulness and determination](https://smanewstoday.com/columns/living-sma-requires-resourcefulness-determination/) _2026-08-20 · Ari Anderson · SMA News Today – The Web's Daily Resource for Spinal Muscular Atrophy News_ Living with SMA entails so much more than physical challenges and caregiver shortages. Our lives are much fuller and richer than that. The riches are in our day-to-day experiences, as well as the wisdom and maturity that SMA bestows upon us. This often results in other qualities, such as resourcefulness and determination, which are necessary \[…\] The post Living with SMA requires resourcefulness… ## [Study links Parkinson’s hallucinations to low brain chemical activity](https://parkinsonsnewstoday.com/news/study-links-parkinsons-hallucinations-low-brain-chemical-activity/) _2026-08-20 · Steve Bryson, PhD · Parkinson's News Today – The Web's Daily Resource for Parkinson's News_ People with Parkinson’s disease who experience visual hallucinations have reduced activity in the brain’s cholinergic system, a network of nerve cells that use the chemical messenger acetylcholine, a brain imaging study found. Impaired cholinergic signaling in certain brain regions early on predicted who would later develop visual hallucinations. The researchers said measuring cholinergic activity… ## [We fought for access to Evrysdi, and now we’re fighting to keep it](https://smanewstoday.com/columns/we-fought-access-evrysdi-fighting-keep-it/) _2026-08-19 · Sherry Toh · SMA News Today – The Web's Daily Resource for Spinal Muscular Atrophy News_ “Did you tell your siblings my medication costs about $1,000 SGD \[$783\] per day, before subsidies?” I texted my dad a couple of months back. It had been years since his elder brother and sister had seen me. As fate would have it, I was due for phenol and steroid injections to treat chronic pain \[…\] The post We fought for access to Evrysdi, and now we’re fighting to keep it appeared first on SMA… ## [We thought Uncle Brandon needed us, but forgot how much we needed him](https://parkinsonsnewstoday.com/columns/we-thought-uncle-brandon-needed-us-forgot-much/) _2026-08-19 · Crystal Onyema · Parkinson's News Today – The Web's Daily Resource for Parkinson's News_ There are few sounds more frightening during a Texas summer than an air conditioner suddenly going silent. Temperatures were climbing past 100 degrees, the house was getting warmer by the minute, and my family was becoming increasingly unnerved. We called a few air-conditioning companies, but between the heat wave and packed schedules, getting someone to \[…\] The post We thought Uncle Brandon… ## [Developer raises $36M, will help fund late-stage Parkinson’s clinical trial](https://parkinsonsnewstoday.com/news/developer-raises-36m-partly-funding-late-stage-parkinsons-clinical-trial/) _2026-08-19 · Marisa Horak, MS · Parkinson's News Today – The Web's Daily Resource for Parkinson's News_ Remepy has raised $36 million in financing, which the company will use in part to fund a late-stage clinical trial testing Hybridopa, its novel treatment strategy for Parkinson’s disease that combines medication with a mobile application. With these funds in hand, the New York-based Remepy expects to launch a Phase 3 trial later this year, \[…\] The post Developer raises $36M, will help fund… ## [Newborn screening, early treatment show benefit in SMA type 1](https://smanewstoday.com/news/newborn-screening-early-treatment-show-benefit-sma-type-1/) _2026-08-19 · Steve Bryson, PhD · SMA News Today – The Web's Daily Resource for Spinal Muscular Atrophy News_ Infants diagnosed with spinal muscular atrophy (SMA) type 1 through newborn screening programs (NBS) and treated early with Spinraza (nusinersen) showed better survival, motor function, milestone achievement, and feeding and breathing independence than infants who began treatment after symptoms appeared, a real-world study in Turkey found. The nationwide study’s findings demonstrate that “timing… ## [Looking back on the unexpected gifts that Parkinson’s brought](https://parkinsonsnewstoday.com/columns/looking-back-unexpected-gifts-parkinsons-brought/) _2026-08-18 · Jamie Askari · Parkinson's News Today – The Web's Daily Resource for Parkinson's News_ Life takes many twists and turns and often leads you to places you never imagined. The addition of my husband Arman’s Parkinson’s disease to our lives has certainly taken us on an unexpected journey. As I set out on this caregiver path, I quickly realized that there is no road map, directions, or manual included \[…\] The post Looking back on the unexpected gifts that Parkinson’s brought appeared… ## [Finding joy in physical therapy and strength through creative play](https://smanewstoday.com/columns/finding-joy-physical-therapy-strength-creative-play/) _2026-08-18 · Connie Chandler · SMA News Today – The Web's Daily Resource for Spinal Muscular Atrophy News_ Some of my earliest memories are of my mom helping me get dressed up for ballet. Nothing says prima ballerina vibes like a leotard, some tights, and chunky 80s-style leg warmers. I was 4 years old, and I wasn’t actually going to a ballet lesson; I was going to my weekly physical therapy appointment. But \[…\] The post Finding joy in physical therapy and strength through creative play appeared first… ## [8.1% APY Plus Free Stock (Sponsored)](https://crawlproof.com/a/6XQonXh2o3tO) _2026-08-18 · **Sponsored**_ Claim 8.1% APY and up to $1,030 in SK hynix and Nvidia stock. ## [Gut bacteria can vary with Parkinson’s severity, age, and medications](https://parkinsonsnewstoday.com/news/gut-bacteria-vary-parkinsons-severity-age-medications/) _2026-08-18 · Margarida Maia, PhD · Parkinson's News Today – The Web's Daily Resource for Parkinson's News_ Changes in gut bacteria may be linked to Parkinson’s disease and can vary with age, disease severity, and medications, but more research is needed to understand whether these changes actually contribute to how symptoms develop and progress, a study suggests. “These findings regarding the relationships between microbial communities and disease characteristics warrant further investigation and \[…\]… ## [More activity linked to slower motor, cognitive decline in Parkinson’s](https://parkinsonsnewstoday.com/news/staying-active-may-help-slow-parkinsons-motor-cognitive-changes/) _2026-08-18 · Patricia Inácio, PhD · Parkinson's News Today – The Web's Daily Resource for Parkinson's News_ Higher levels of physical activity are associated with slower worsening of certain motor symptoms and better preservation of certain measures of cognitive function in people with Parkinson’s disease, according to a recent study. People who were more physically active also showed a slower decline in dopamine transporter (DAT) availability in the caudate, a brain region \[…\] The post More activity… ## [I always forget I have medical trauma until I’m in the operating room](https://smanewstoday.com/columns/i-always-forget-medical-trauma-until-operating-room/) _2026-08-17 · Brianna Albers · SMA News Today – The Web's Daily Resource for Spinal Muscular Atrophy News_ Another day, another trek to Gillette Children’s Specialty Healthcare. This time, though, it’s for something I’ve never done before: a cortisone injection in my right hip. For all I’ve written about chronic pain over the years, I don’t think I fully understood how debilitating it can be until just recently. It takes up space in every area \[…\] The post I always forget I have medical trauma until… ## [Eye-movement biomarkers may flag Parkinson’s decline earlier](https://parkinsonsnewstoday.com/news/eye-movement-measures-may-flag-functional-decline-parkinsons/) _2026-08-17 · Andrea Lobo · Parkinson's News Today – The Web's Daily Resource for Parkinson's News_ Neuralight’s eye-movement biomarkers may predict declines in daily functioning in people with Parkinson’s disease before those changes can be detected by conventional clinical assessments, new clinical study data suggest. The PALOMA study (NCT05862649), which involved hundreds of adults at clinical sites in the U.S. and Europe, previously produced data that Neuralight said showed the biomarkers… ## [Scholar Rock shifts manufacturing plan to keep SMA drug on track](https://smanewstoday.com/news/scholar-rock-shifts-manufacturing-plan-keep-sma-drug-track/) _2026-08-17 · Marisa Horak, MS · SMA News Today – The Web's Daily Resource for Spinal Muscular Atrophy News_ The U.S. Food and Drug Administration (FDA) has once again found problems at a manufacturing facility that was included on Scholar Rock‘s application seeking approval of apitegromab, its experimental muscle-strengthening agent for spinal muscular atrophy (SMA). In light of the continued issues at the facility, Scholar Rock said it will remove that facility from its \[…\] The post Scholar Rock shifts… ## [Parkinsonian tremor](https://parkinsonsnewstoday.com/parkinsons-disease-symptoms/motor/parkinsonian-tremor/) _2026-08-17 · Laura Flavell, PhD · Parkinson's News Today – The Web's Daily Resource for Parkinson's News_ A parkinsonian tremor is a type of tremor often associated with Parkinson’s disease. While it doesn’t affect everyone with the condition, it is often one of the first motor symptoms of Parkinson’s people notice. The term “parkinsonian” refers to parkinsonism — a group of conditions, including Parkinson’s disease, that have different causes but similar features \[…\] The post Parkinsonian tremor… ## [Nourianz (istradefylline) for Parkinson’s disease](https://parkinsonsnewstoday.com/nourianz-istradefylline/) _2026-08-16 · Lila Levinson, PhD · Parkinson's News Today – The Web's Daily Resource for Parkinson's News_ Nourianz (istradefylline) is an add-on medication used to manage off episodes in people with Parkinson’s disease who are on carbidopa and levodopa. The oral medication is thought to influence a brain signaling molecule called adenosine. The post Nourianz (istradefylline) for Parkinson’s disease appeared first on Parkinson's News Today . ## [Engaging with others by asking questions can make them feel seen](https://parkinsonsnewstoday.com/columns/engaging-others-asking-questions-make-them-feel-seen/) _2026-08-14 · Christine Scheer · Parkinson's News Today – The Web's Daily Resource for Parkinson's News_ A couple of months ago, a fellow boxer from my Parkinson’s boxing program passed away. I didn’t go to his memorial, but he was a well-loved member of the community, and apparently there were many hundreds of people there to celebrate him. A friend and I were musing on how little we knew about him, \[…\] The post Engaging with others by asking questions can make them feel seen appeared first on… ## [I can’t do anything on my own, but I can accomplish much with others](https://smanewstoday.com/columns/i-cant-do-anything-my-own-much-others/) _2026-08-14 · Halsey Blocher · SMA News Today – The Web's Daily Resource for Spinal Muscular Atrophy News_ I promise I’m not being negative or dramatic when I say I can’t do anything on my own, and I don’t lack confidence in myself, either. It’s just a fact that with my severe disability, I need help with literally everything. That isn’t a bad thing. It’s a truth that demands to be acknowledged and \[…\] The post I can’t do anything on my own, but I can accomplish much with others appeared first on SMA… ## [Children with SMA face higher risk of severe RSV, study finds](https://smanewstoday.com/news/children-sma-face-higher-risk-severe-rsv-study-finds/) _2026-08-14 · Lila Levinson, PhD · SMA News Today – The Web's Daily Resource for Spinal Muscular Atrophy News_ Children with spinal muscular atrophy (SMA) have a higher risk than their peers in the general population of developing severe respiratory syncytial virus (RSV) infections, a nationwide study from Taiwan found. SMA kids were more likely to be hospitalized, require admission to an intensive care unit (ICU), and use ventilatory support for breathing, the study \[…\] The post Children with SMA face… ## [Know before it drops (Sponsored)](https://crawlproof.com/a/4lmByzyDc4nO) _2026-08-14 · **Sponsored**_ Follow a show, artist, genre or rocket and get notified before release ## [A double rainbow, a flash flood, and memories of different kinds of storms](https://smanewstoday.com/columns/double-rainbow-flash-flood-memories-different-kinds-storms/) _2026-08-12 · Helen Baldwin · SMA News Today – The Web's Daily Resource for Spinal Muscular Atrophy News_ Last Wednesday evening, a double rainbow popped up across the road. We’d had rain to some extent every afternoon and night. The rainbow provided a beautiful bit of calm and was, we hoped, a sign that the rain would be easing up. It turned out to be the calm before the storm. The rain began \[…\] The post A double rainbow, a flash flood, and memories of different kinds of storms appeared first on SMA… ## [SMA webinar to explore relationships, careers, and travel beyond the clinic](https://smanewstoday.com/news/sma-webinar-puts-relationships-work-travel-spotlight/) _2026-08-12 · Marisa Horak, MS · SMA News Today – The Web's Daily Resource for Spinal Muscular Atrophy News_ In a few weeks, SMA News Today will host a free webinar exploring aspects of life with spinal muscular atrophy (SMA) that are rarely discussed in the doctor’s office, including romantic relationships, careers, and travel. The webinar, taking place Aug. 25 at 1 p.m. ET, is titled “Rarely Speaking: SMA Beyond the Clinic (Real patient voices. \[…\] The post SMA webinar to explore relationships,…