# als caregiver (audio feeds) — RSS Amplifier Recent posts from the 1 feeds in the RSS Amplifier directory that cover als caregiver. Page: Feed: --- ## [Your Story, Our Science: Her ALS Story and ALS TDI Bring Together Science and Lived Experience](https://omny.fm/shows/endpoints-podcast/your-story-our-science-her-als-story-and-als-tdi-bring-together-science-and-lived-experience) _2025-09-05 · Endpoints_ Nobody knows ALS better than people living with the disease. Therefore, it's crucial for scientists to utilize the perspectives of people with lived experience in their research. Earlier this year, ALS TDI joined with Her ALS Story -a group of women diagnosed with ALS before the age of 35-to put on a series of Town Hall webinars that highlighted the importance of this connection. The three-part… [Listen](https://traffic.omny.fm/d/clips/0d2f442e-125e-4a95-9e25-aabd01618751/7415a69a-125b-4d75-afeb-aabe01348187/d9ebdda9-c96d-4422-991d-b34f010b7e16/audio.mp3?utm_source=Podcast&in_playlist=96a50e82-8316-4028-8520-aabe01364b80) ## [How Brain Computer Interfaces (BCIs) Could Help People with ALS Communicate](https://omny.fm/shows/endpoints-podcast/how-brain-computer-interfaces-bcis-could-help-people-with-als-communicate) _2025-08-14 · Endpoints_ Brain-computer interfaces, or BCIs, aim to enable people to control various adaptive devices directly with their thoughts. There are many BCI devices currently in various stages of development, with the potential to help people with ALS and similar conditions across many different activities of daily life. One particular area in which BCI devices may be able to support people with advanced ALS… [Listen](https://traffic.omny.fm/d/clips/0d2f442e-125e-4a95-9e25-aabd01618751/7415a69a-125b-4d75-afeb-aabe01348187/13d06a73-5551-4b2e-9b94-b33900fa48f4/audio.mp3?utm_source=Podcast&in_playlist=96a50e82-8316-4028-8520-aabe01364b80) ## [The Power of Big Data in ALS: Dr. Danielle Boyce](https://omny.fm/shows/endpoints-podcast/the-power-of-big-data-in-als-dr-danielle-boyce) _2025-02-20 · Endpoints_ Today on Endpoints, Dr. Danielle Boyce joins us to explore how data science is transforming our understanding of ALS and why the ALS Research Collaborative (ARC) Study presents an exciting opportunity for research. As ALS TDI's Principal Investigator for Real-World Evidence , Dr. Boyce brings extensive expertise in analyzing big data to uncover key insights about ALS. Her work focuses on… [Listen](https://traffic.omny.fm/d/clips/0d2f442e-125e-4a95-9e25-aabd01618751/7415a69a-125b-4d75-afeb-aabe01348187/f1f5f42f-184f-4fe8-8ee6-b28a0111b51b/audio.mp3?utm_source=Podcast&in_playlist=96a50e82-8316-4028-8520-aabe01364b80) ## [So Much So Fast: Documenting the Earliest Days of ALS TDI](https://omny.fm/shows/endpoints-podcast/so-much-so-fast-documenting-the-earliest-days-of-a) _2025-01-16 · Endpoints_ 25 years ago, Steven Ascher and Jeanne Jordan began filming a documentary about a new, one-year-old organization and the family that founded it. That organization was called the ALS Therapy Development Foundation, and its mission was to find treatments for ALS. It was started by Jamie Heywood, whose brother Stephen had been diagnosed with the disease at the age of 29. The film they made, So Much… [Listen](https://traffic.omny.fm/d/clips/0d2f442e-125e-4a95-9e25-aabd01618751/7415a69a-125b-4d75-afeb-aabe01348187/2e2af068-71dd-4406-a7f8-b267011e9a0e/audio.mp3?utm_source=Podcast&in_playlist=96a50e82-8316-4028-8520-aabe01364b80) ## [The ALS Trial Navigator: Dr. Nadia Sethi on Building a Comprehensive Clinical Trial Database](https://omny.fm/shows/endpoints-podcast/the-als-trial-navigator-dr-nadia-sethi-on-building) _2024-12-13 · Endpoints_ In February 2024, ALS TDI launched the ALS Trial Navigator, a set of online tools designed to help people with ALS find clinical trials. Users can fill out a questionnaire to be matched with trials that meet their criteria, search a global database of studies, and even find sites close to them on an interactive map. Dr. Nadia Sethi, an ALS advocate who became a clinical trial expert after her… [Listen](https://traffic.omny.fm/d/clips/0d2f442e-125e-4a95-9e25-aabd01618751/7415a69a-125b-4d75-afeb-aabe01348187/6857d977-2861-4fd4-a161-b2450130abcd/audio.mp3?utm_source=Podcast&in_playlist=96a50e82-8316-4028-8520-aabe01364b80) ## [Chris Ritter of Oakland United Beerworks: An Ales for ALS™ Story](https://omny.fm/shows/endpoints-podcast/chris-ritter-of-oakland-united-beerworks-an-ales-f) _2024-11-14 · Endpoints_ Chris Ritter, the co-owner of Oakland United Beerworks, never thought he’d make a profession out of brewing. He had always loved beer but was a lawyer by training. Brewing was his son Andrew’s great passion. From a young age, Andrew always knew he wanted to make beer. After college, he got into the industry and eventually became the lead brewer of his own brewery. Everything changed for the Ritter… [Listen](https://traffic.omny.fm/d/clips/0d2f442e-125e-4a95-9e25-aabd01618751/7415a69a-125b-4d75-afeb-aabe01348187/352bddaa-1977-4006-a8a8-b228012a6f60/audio.mp3?utm_source=Podcast&in_playlist=96a50e82-8316-4028-8520-aabe01364b80) ## [Biogen's Dr. Stephanie Fradette on the Current State of ALS Research](https://omny.fm/shows/endpoints-podcast/biogens-dr-stephanie-fradette-on-the-current-state) _2024-10-30 · Endpoints_ We need more – likely many more – effective treatments to end ALS. Progress in ALS research has been too slow for too long but, in 2024, we’re witnessing significant advances and a new pace of progress. The past few years have see more treatments for ALS in clinical trials than ever before. Still, most drugs that reach trial fail, in any disease. However, the more experimental treatments that make… [Listen](https://traffic.omny.fm/d/clips/0d2f442e-125e-4a95-9e25-aabd01618751/7415a69a-125b-4d75-afeb-aabe01348187/46dc1d28-2a6c-4735-a919-b219013584ad/audio.mp3?utm_source=Podcast&in_playlist=96a50e82-8316-4028-8520-aabe01364b80) ## [ALS TDI's Early Years: Founding the First Nonprofit Biotech](https://omny.fm/shows/endpoints-podcast/als-tdis-early-years-founding-the-first-nonprofit) _2024-10-16 · Endpoints_ In 1999, Stephen Heywood, who was 29 years old at the time, was diagnosed with ALS. His family was devastated when they learned that there were no treatments that could slow or stop his disease. His brother Jamie decided that he had to do something about it, founding the organization that would eventually become ALS TDI – the world’s first nonprofit biotech – in the basement of his parents’… [Listen](https://traffic.omny.fm/d/clips/0d2f442e-125e-4a95-9e25-aabd01618751/7415a69a-125b-4d75-afeb-aabe01348187/645d99ac-2fb0-4950-b017-b20b01216182/audio.mp3?utm_source=Podcast&in_playlist=96a50e82-8316-4028-8520-aabe01364b80)