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The Personal ME

Fortnightly reflections on myalgic encephalomyelitis (ME) and Long Covid for those who live it and those who want to understand more.

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I met a friend with ME for coffee. It was so good.

Way cheaper, and maybe more effective, than therapy.

What Wired got wrong #1: bias and a mismatched ending

Cherry picking, misrepresentation, and PACE (again)

What the Wired article got right

Taking the positives from an otherwise flawed piece

A letter for your MP

Popping my head back in from my travels

Memories of very severe ME: the value of good friends

Something that cannot be overstated

Rehab risks: my response to 'that' BMJ piece

Bespoke, tailored, expert, specialist - easy to say, harder to define

The Problem With ME Care #1: Psychiatric Framings

Psychiatry looms large in NHS care for ME, especially in very severe cases. Why do so many of us resist it?

Memories Of Very Severe ME: My GP, Lost At Sea

My last post explained the crash that left me bedbound with ME for 18 months in 2022. Here's what happened in the following days.

Memories of Very Severe ME: The Crash That Left Me Bedbound For 18 Months

An experience I'd rather forget but want to share

When the page went quiet

Reflections on reading before and after ME