Own Your IBD Journey
Hi and welcome back to this six-part blog series about my 2023 – 2024 journey with autoimmune pancreatitis. Today is part five, but if you missed any previous posts, be sure to read them here first! In part five, we left off this story with me deciding to stop Entyvio. This was one of the […]
Hi and welcome back to this six-part blog series about my 2023 – 2024 journey with autoimmune pancreatitis. Today is part five, but if you missed any previous posts, be sure to read them here first! In part four, we left off this story with my alarm bells ringing. The fact that I continued to […]
Hi and welcome back to this six-part blog series about my 2023 – 2024 journey with autoimmune pancreatitis. Today is part four, but if you missed the first half of this series, be sure to read those posts first here! This post will cover my three prednisone courses and tapering structures, why I declined my […]
Hi there! Welcome to part three of this six-part blog series about my crazy rollercoaster journey with autoimmune pancreatitis. Did you miss part one or two? Check them out here! This post will cover my third (and final) hospital stay, my specialty endoscopy procedure, and my super strange pathology results. We left off in late […]
Welcome back to part two of this 6-part blog series about my recent journey with autoimmune pancreatitis! If you missed part one, be sure to check it out here first. It’s all about my pancreatitis symptoms, blood tests and procedures I had done, and my first (of three) hospital stays. Today’s post will cover my […]
In December 2023, my world tipped upside down. I was just coming out of a six-month ulcerative colitis flare. One day, it felt like a literal bowling ball had lodged itself in my upper abdomen. It hurt to move. It hurt to eat. It hurt to breathe. The only thing that gave me some relief […]
Ana María Hunt submitted her story about how she went from near-death to life, thanks to oral vancomycin. Ana María, a 52-year old PSC patient, had been living with liver cirrhosis. In addition, she’d been experiencing debilitating symptoms including brain fog and chronic fatigue. Because of this, she’d had to stop working. Then, she started […]
If you’re taking oral vancomycin for your PSC, there are three documents you NEED to be aware of. Understanding these three documents may help you access oral vancomycin from a physician and from your insurance. All three documents are associated with the American Association for the Study of Liver Diseases (AASLD). Let’s take a deep […]
On September 9, 2022, the American Association for the Study of Liver Diseases (AASLD) officially published their PSC Guidance as well as an Support Statement. In this post, I’m going to share why the Guidance for the oral vancomycin section is negative, why the Support Statement is positive, and what this means for PSC patients […]
In early July 2022, I learned from the American Association for the Study of Liver Disease (AASLD) that they’ll be updating their PSC Guidance to limit the use of oral vancomycin to clinical trials. Their Guidance will also state that treating IBD associated with PSC is outside their scope. If this AASLD Guidance passes, insurance […]