SED 606: Muscle Man
This week, Tess's bones have posed some problems in the past. Are they out of whack again?
Stronger Every Day
I quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called Hao-Fountain Syndrome, or USP7. She's different. And now, so is everything else. #USP7 #HaoFountainSyndrome #autism
Subscribe:.rss.atom.json.md.m3u.pls
Live Last read · last published · next check
Latest episodes
SED 605: Into and Out of the Water
This week, our crew is just back from vacation and as usual Tess had a surprise for us.
SED 604: Why We Are Here
This week, perhaps you've wondered in a big-picture kind of sense why we are here. Well, Tess has some ideas about that.
SED 603: So You've Got Sleep Apnea
This week, if you stop breathing multiple times during the night, that's actually not good for you.
SED 602: Zero Oats
This week, Tess heads to the hospital for an upper endoscopy, breakfast not included.
SED 601: Dad Camp Gets Company
This week, let's check in on our girl Tess as our summer continues and we search for fun things to do. A huge shout-out to Mama Swan, host of the excellent podcast Raising Dragons with Mama Swan , available on Spotify and YouTube .
SED 600: Beige and Salmon
This week, we're trying to get home from Puerto Rico, where Tess has had a seizure.
SED 599: Awake and Combative
This week, we're in Puerto Rico, where Tess has had a seizure and ambulance ride.
SED 598: Four in the Morning in Fajardo
This week, we are in Fajardo, Puerto Rico, where Tess meets a friend while wading in a shallow pool, and they both seem to know something that we don't.
SED 597: The Pineapple Didn't Do It
This week, the aftermath of Tess's medical event at school.
SED 596: Super Grateful This Thing Sucks
This week, another close call with Tess, this time at school.