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solongasicanbreathe

Be Kind, and remember, you know nothing about the person behind the façade

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Not Knowing

Sometimes, not knowing is best. Knowledge is required for our survival. It’s a vital tool in our box; but every so often, not knowing can be as important as knowing. Ten days ago I heard a loud thump outside my house, and having heard that very same noise before, I knew exactly what had happened. […]

Efficiency or Necessity?

Perhaps War is too strong of a word, but when you’re constantly trying to live in a body that wants to veer off in one direction, while you desperately want it to do something in the opposite direction, you find yourself at war. With yourself. This war is not the type of energy sapping blows, […]

When Summer Sings

For many people, summer is summed up in one word. Sun. Now, I know our very existence depends on the sun, however, when her temperature creeps up beyond 19 degrees, I must admit I find her intolerable. Since getting ME, I can no longer regulate temperature and when I over-heat – which I can do […]

The Bath Mat

It was a Sunday. Having gone to bed at 7pm the night before, the birds announced morning and I woke to face another day. A day with a plan. I always have a plan. A task or tasks I want to complete before bedtime and I rarely manage to tick off the list, as my […]

Ode to a Crow

When you live from the one spot for years upon years, you learn natures’ patterns as she dips in and out of the passing seasons. The front of my house is where I look for Sirius after sunset, while the back of my house holds the north star. In between, the sun rises and sets, […]

Icing – forget the cake –

Heat and I have had a love affair since the arrival of ME in my life. When I say heat, I don’t mean 20 something degrees outdoors (yuck), but rather heat packs, hot water bottles, and heat wraps. Pre-ME I didn’t have a medicine cupboard. I was 30 and my cupboards were filled with food […]

The Fall and the Stairs

I hate stairs. I avoid them if at all possible. When forced to go up or down them, I move slowly, taking one step in a snail pace of time. Since ME arrived, I move slowly in everything I do, never having the energy to rush, but hey, falls happen. Last year I fell twice […]

Ying and Yang (Part 2)

Sometimes life decides you need a new washing machine when Ireland is tissue boxes deep in flu season. This meant, one of the two people who arrived at my home in early January to install my new fancy, dancing washing machine arrived with the flu. There are strict rules in this household regarding illness: Don’t […]

Ying and Yang (Part 1)

When I was eleven or twelve a friend and I overheard our mums excitedly discussing washing machines. We listened, giggling at the thought of being so innately interested in something so ornate as a washing machine, laughing at the high-pitched Ooh’s and Aaahs (there was even drool), as the mystifying details of a newly installed […]

Big Dreamer

Dreaming is on trend. Dream big. Dream, manifest… and the universe will reward us… Over the last 14 years I’ve dreamt of being well, and dreamt of returning to work. I still dream about both, regularly taking a peek at open accounting jobs, allowing myself dream about the day I take up a part-time, (working […]