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This community provides words of encouragement, comfort, and support for people with all forms of IBD, as well as their friends & family! This place is not a substitute for doctor's advice. We cannot treat or diagnose. (And we have a Discord: https://discord.gg/g2gcwb6)

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ileostomy and uni

Whatsup everyone, looking to go uni next year and wanted to know if anyone has anything that could help me, anything like advice about accommodation, relationships, balancing work and rest etc. I am a UK student in a UK uni if that changes anything for advice. More interested if anyone had any tips rather then looking for anything specific submitted by /u/AmazingCheesyMuffin [link] [comments]

UPDATE: mre results

WELLLL. MRE results came back. my scan results showed so many different things. the disease is definitely very, very severe. my small intestine is screwed. • several abnormal segments of the small intestine • they found either 2 or 3 different strictures (the narrowing), 2 definite strictures and one potential (but the 3rd could have progressed to a stricture by now) - it shows dilation in the…

Crohn's and Alcohol Tolerance

Just out of curiosity, is your alcohol tolerance relatively low or high? This is applicable for those who can or still drink. Mine's low but I never vomit. submitted by /u/Drocell-Welp [link] [comments]

Positive reassurance

Hi guys, My mother was diagnosed with Crohn’s disease three years ago. Back then it took a long time for her to go to the doctor, we didn’t know what was happening and it took a long time for her to heal. She was in remission for three years and now she’s in her first real flare up. She went to the doctor sooner, started taking medication and her labs are improving but honestly the situation is…

Handling life with Crohn's

Hi I've had Crohn's since I was a teen and I'm now 32. I've been in some intense flare ups that leave me debilitated. The main reason I posted is how have y'all handled life on a Financial level. I work but work has been decreasing for me due to my energy levels. How do y'all manage trying to pay bills and try to have a stress reduced life? I've been struggling so bad so that I applied for…

afraid to open MRE results

i just got my MRE results after my scopes to see the full extent of my raging flare right now in my small bowel / my severe narrowing and if i need another surgery soon... i'm really glad i get to see them before i talk to my doctor so i can prepare, but i'm terrified to even open them. i need these answers, but i'm so scared as to what they say. i'm more afraid than anything that the results…

Has anyone successfully lost weight while on Prednisolone?

I’ve recently found out that I’ll need to go on a course of Pred for 8 weeks due to a flare up (currently on Rinvoq), and as silly as it is, I had to stop myself from bursting into tears while leaving the doctor’s office. Apart from the regular side effects like roid rage and being wired, I’ve still not lost the 30lbs from the last two courses (within the last few years). I was planning on trying…

Question on Creatine and Crohn’s

Has anyone taken Creatine while on Crohn’s? Any adverse effects? submitted by /u/SpyderBladeX [link] [comments]

Does anyone take two different immunosuppressants?

I have MS and Crohn’s disease. I’ve been on Zeposia for about a year. Recently I’ve been in a bad Crohn’s disease flare up. My doctor is now talking to me about starting on a supplemental immunosuppressant medication (possibly tremfya or skyrizi). Does anyone have experience taking two immunosuppressants? submitted by /u/Honest-Elevator-9089 [link] [comments]

Crohn‘s flare with low Calprotectin?

Hi all, I’ve had diarrhea several times a day since the beginning of the year. Since I was under so much stress at work and on the verge of burnout, I thought it was irritable bowel syndrome. When the doctor first tested my calprotectin levels (about 5 weeks ago), the result was 480 so way too high. That’s why I had a colonoscopy (which didn’t find anything) and an MRI - which revealed active…