Recent content in Paul Keebles ME/CFS and Long Covid Life on Hold on Paul Keeble
There are numerous guides to controlling a 4 pin PC fan with an Arduino and ESP32. None of them worked to read the tachometer correctly for me with a Noctua NF12 fan. The issue is that the spec for the tachometer (Pin 3) is that it be pulled up to 12 Volts with a maximum current of 5mA. This is the Reference for this from Intel, you will find the 12Volt requirement at the start of section 2. We…
Module 8 of the Long Covid inquiry in the UK set out to determine the impact on Children and Young People. Due to the way the inquest has been setup Long Covid has been a secondary issue in prior modules mostly addressed as something only the Long Covid participants were allowed to bring up as the last questions of a person giving evidence. However module 8 has brought this big issue more to the…
Aaron interviewed Dr Rae Duncan on the topic of Long Covid and ME/CFS on Twitter spaces February 25th 2025. 
 Alas Twitter/X deletes space recordings after 30 days and this is an important interview for Long Covid and ME/CFS sufferers. 
 Interview with Dr Claire Taylor MP3

 Covid19 lingers and spreads in the air like smoke, only we can’t see it nor smell it because its carried on the water vapour particles that humans exhale from their lungs. Various research projects show it can survive for several hours in indoor environments before the environment damages it to the point it is no longer being able to infect someone. Just because a room is empty doesn’t…
I asked via email or web form on Friday 24th May every single UK political party that has a national seat or assembly seat the following question: 
 
 What is your parties official policy on Covid, Long Covid and ME/CFS? 
 
 It is one weak later and only Alliance and Reform UK have responded. Their responses in full are below. Note that Reform UK has ignored my question and has…
Below is a summary of issues I have with NHS England E-learning Module 1 on ME/CFS as published on the MEAssociation website. 
 https://meassociation.org.uk/2024/05/nhs-england-launches-new-e-learning-module-on-me-cfs/ 
 TLDR - This underplays the severity of the disease, gets the definition of the disease wrong and fails to explain PEM and its consequences correctly. It also fails to list…
With the onset of Long Covid in March 2020 I gained substantial constipation, bloating and pain throughout my large intestine. I initially had to go onto a FODMAP diet. Alongside that I found it difficult to eat and I had to eat protein shakes. This is my short take on the things I have found useful and I think have improved my gut function so that I can tolerate more foods today. While I would…
Pete interviewed Dr Claire Taylor on the topic of Long Covid and the existing treatment options on Twitter spaces August 21st 2023. 
 Alas Twitter/X deletes space recordings after 30 days and this is an important interview for Long Covid sufferers. 
 Interview with Dr Claire Taylor MP3
The current proposed interim delivery plan for ME/CFS
( https://www.gov.uk/government/consultations/improving-the-experiences-of-people-with-mecfs-interim-delivery-plan ) is lacking in details and useful actions to talk about the exact text because the severity of the situation isn’t accurately portrayed. What I want to talk about is the reality I and other sufferers I talk to face in…
This paper found that a circular checkboard pattern flickered and held for 16 seconds and then turned off for 16 seconds resulted in cerebrospinal fluid flow and could aid clearing the brain in an awake state much like we do when asleep. 
 I have produced similar images as used in the experiment. I have used 16 seconds on and off and the checkerboard flickering. 
 Changelog 
 V0.3…
The latest version of Raspbiean lite comes with wifi power management enabled and this causes disconnections when not used a client device. You need to run the command iwconfig wlan0 power off to fix the problem and you can so with systemd to work around the well known issue . 
 I was trying to get some SGP40 Volatile organic compound sensors setup on a few raspberry pi 3Bs for monitoring 3D…