Patterns in the data: a new way to explore what younger people with AFib are telling us
Every heart in the constellation is a real person. Here's what happens when you let their experiences connect.
Off Beat's Substack
Patient-led research platform for young, active people with AFib. Building a community dataset to fill the gap in clinical research for this underrepresented patient group.
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Latest posts
She Offered to Help With Our Data. Then She Told Us Why It Mattered.
A story about what happens when you're younger, active, and still don't have all the answers.
From the ER to a PR: How I Got Back to Running After AFib, and How You Can Too
The data, the fear, the nights I couldn't sleep, and what the journey back to exercise actually looks like.
What does Off Beat actually want to achieve for young people with AFib?
96 responses. 13 countries. Here's what we're building, why we're building it, and what we plan to do with the data.
What 80 Young People with AFib Told Us (That No Clinical Study Would)
When I built Off Beat, I wanted data.
Why I built a website to track my own heart condition
When you get a diagnosis medicine wasn't built for, you build the evidence yourself.