I Updated The "My Life With IBS" Chapter In My Memoir. I Decided To Post it Here As Well
An honest account of severe IBS, invisible disability, and the quiet ways chronic illness changes your relationships, work, independence, and sense of self.
My Life With IBS - Kevin’s Substack
This FREE blog and newsletter is about my journey with chronic IBS and my journey pursuing MAID. I had lived with IBS since 2008. My hope is that my experiences will help others.
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Latest posts
My Path Toward Medical Assistance in Dying (MAID)
After years of severe, unpredictable chronic IBS, and exhausting every medical option, I’m finally taking control of my end-of-life choices.
What I Wish I’d Been Able to Say About My IBS Before My Colonoscopy, and What I Hope To Say In The Weeks Ahead
Here's what I couldn’t explain before the procedure, including the day-to-day reality of chronic IBS and the constant effort to manage risk and stay functional.
My Colonoscopy: The Procedure Was the Easy Part
The procedure was easy. The prep, exhaustion, post-op flare up due to stress, and recovery were the real challenges.
How Every Remaining Medication Option Is Being Formally Reviewed or Ruled Out as I Continue My Pursuit of MAID
No one believes these medications will prevent me from pursuing MAID, but formal approval still requires that I document trying them anyway.
How Bluebird Chicken Broth Has Changed My Life (and it's Still Not Enough)
After years of trial and error, Bluebird chicken broth has brought real relief for my IBS symptoms, helping me function better day to day.
An Update on Things in Late November: Getting My Affairs in Order
An honest update on my MAID journey, and what I want people to understand about living with chronic IBS.
My Third (and Final) MAID Assessment
A long and emotional journey finally led me to a doctor who truly listened, understood my suffering, and treated me with both fairness and compassion.
My Second MAID Assessment
Despite meeting all of the criteria for MAID, my second assessment ended in denial. Here’s why I'll be fighting that decision.
Living With IBS and Facing MAID: What to Expect with Free Posts and Paid Content
This blog is shifting to support the book I’m writing about my IBS, Caregiving, and what followed. Here’s what is changing, and what paid subscribers can expect.