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Myasthenia gravis (MG) is associated with substantial disruptions to employment, with only about half of working-age adults with MG in a Spanish study employed and nearly one-third receiving permanent work disability benefits. Among participants who reported how MG had affected their employment, more than four in 10 said they had left a job because of […] The post Myasthenia gravis tied to…
Walking has probably been one of my biggest griefs since myasthenia gravis (MG) entered my life. I still remember times when my legs were so numb and exhausted that I simply couldn’t take another step. Walking had always been a way I cleared my head. I could wander around, change my surroundings, think about something […] The post After a long hike, I want to keep discovering what my body can do…
For more than 30 years, I stood in front of classrooms in two states, teaching history. I knew how to read a room and pace a lesson while making the Missouri Compromise seem worth the attention of high schoolers. Then myasthenia gravis (MG) permanently changed my schedule without permission. The stamina a classroom demands became […] The post Chronic illness forced me to reassess my approach to…
Myasthenia gravis (MG) may be driven by antibody-producing immune B-cells going rogue in the thymus gland and developing escape mechanisms that allow them to attack the body’s own healthy tissues, according to new research by U.S. scientists. “Our study suggests there’s more to myasthenia gravis than antibodies alone,” Ankit Bharat, MD, the study’s senior author […] The post MG may be driven by…
Preparing for MG flares helps families face hard days with less fear. Recognizing warning signs, prioritizing essential tasks, assembling a flare kit, and sharing responsibilities can create a safer, more resilient household. The post Planning for the unpredictable: Managing MG hard days as a family appeared first on Myasthenia Gravis News .
What to expect when managing individuals with MG, from early-onset symptoms and fluctuations to stabilization. The post Disease Course and Variability in Myasthenia Gravis appeared first on Myasthenia Gravis News .
Uplizna (inebilizumab) reduced the frequency of disease exacerbations, or periods when symptoms worsen, and the need for rescue therapy in people with generalized myasthenia gravis (gMG). That’s according to a prespecified analysis of data from the global Phase 3 MINT clinical trial (NCT04524273), which showed that after six months of treatment, the risk of an […] The post Treatment cuts…
When you live with a disease like myasthenia gravis (MG), the unexplainable becomes part of daily life. Symptoms appear without warning, flares derail plans, and a diagnosis can feel unfair, no matter how long you’ve lived with it. Religion is one of the oldest ways humans have tried to make sense of the unexplainable, but for […] The post Learning to take comfort when a friend says, ‘I’m praying…
Tanya Chiu shares how a daily gratitude practice helps her appreciate what she can accomplish in modified ways. The post Finding gratitude while living with MG appeared first on Myasthenia Gravis News .
Jennifer Crow shares how MG changed her role at home and required her family to reorganize everyday chores and responsibilities. The post Adapting household life around MG appeared first on Myasthenia Gravis News .
Myasthenia gravis (MG) is the strongest predictor of complications after a thymectomy, a surgery to remove a tumor of the thymus gland, according to a study in China. The risk of post-surgery complications was more than seven times higher in people with MG. Other factors independently associated with complication risk were a more advanced tumor […] The post MG emerges as top predictor of…
My mother was not a quilter. In 87 years, I don’t think she ever gave quilts a thought. It wasn’t until I was an adult living in the South that I became aware of the craft’s popularity. I learned about quilting weekends, magazines, stores, group chats, and more. I saw the intricacies in each piece […] The post What quilting taught me about love in life with myasthenia gravis appeared first on…
