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Further ME Research UK-funded research from Dr Leighton Barnden’s team at Griffith University adds to growing evidence that both ME/CFS and long COVID are associated with measurable changes in the brain. Using advanced MRI techniques capable of detecting subtle abnormalities not picked up by standard scans, the team found alterations in brain tissue microstructure in […]
Last week, in a posting on X, the Simmaron Research Centre, USA (whose institute works to advance translational science in treating neuroimmune diseases) have highlighted that “one of the biggest challenges in ME/CFS research has been patient heterogeneity“. This research group is behind a Rapamycin Pilot Treatment Trial for ME/CFS, and in 2022 published a […]
Research from Associate Professor Rob Wüst – who has recently published a study, co-funded by ME Research UK, which identifies that muscle problems in long COVID and ME/CFS cannot be explained by prolonged inactivity – was highlighted (around 28 minutes and 50 seconds into the YouTube video) by Professor David Putrino as some of the […]
Please take a few minutes to complete our short survey and help inform us about your experience of post-exertional malaise (PEM).
Post-exertional malaise (PEM), the cardinal feature of ME/CFS, is particularly debilitating as it involves the amplification of existing symptoms, alongside the potential appearance of new ones, following minimal exertion. However, the term “exertion” may be misconstrued, by those unfamiliar with ME/CFS, as activities typically considered high intensity by healthy individuals. Consequently,…
Tomorrow, we’re kicking off Symptom Saturday – an ongoing series dedicated to taking an in-depth look at one core or additional symptom of ME/CFS at a time. The weekly series will explore relevant research, clinical guidelines, lived experiences, and management (including reference to key comorbidities). Look out for our survey later in the day to […]
An article has been published by Aarhus Universitet announcing that Associate Professor Rikke Katrine Jentoft Olsen from the university’s Department of Clinical Medicine will work alongside Prof. Simon Carding on the DISCOVER-ME research project – a major pan-European research project which represents a significant advance in co-ordinated international biomedical research into the ME/CFS.…
An article entitled “Guidance on Home-Based Care for People with Severe ME/CFS: A Transdisciplinary Expert Statement” has been published. Estimates suggest that around 25% of individuals with ME have the severe form of the disease, and the impact of severe ME on an individual’s life is profound, leaving many confined to their homes, bedbound, or […]
Background Severe ME Day – 8th August – is a day dedicated to raising awareness about severe myalgic encephalomyelitis (ME). Estimates suggest that around 25% of individuals with ME suffer from the severe form of the disease. The impact of severe ME on an individual’s life is profound, leaving many confined to their homes, bedbound, or […]
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