Long Covid Advocacy
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To clearly name the problem: The term is accepted in medicine as a common-sense position that on the surface makes a great deal of sense. Yet, there is often a hidden psychosomatic interpretation that has led to significant patient harm.
We are pleased to host writer Ted Monroe with a wonderfully incisive article on the recent controversial article ‘The Painful Truth about Long Covid’ by Alan Levinovitz.
Continuing the dialogue on ME, Long Covid and evidence-based psychiatric education Audio on Substack In June, the Royal College of Psychiatrists responded to our open letter concerning the framing of Long Covid at the Royal College of Psychiatrists International Congress. We welcomed the opportunity to receive a formal response. Rather than replying immediately, we took time to consult with many…
Hold your excitement! Today, on the 14th June, we are present and LIVE at the Royal College of Psychiatrists International Congress in Liverpool to share a respectful leaflet and our open letter directly with delegates. This is ahead of tomorrow's Long Covid presentations by Paul Garner, Trudie Chalder and Alan Carson.
The response has been extraordinary. To date, the letter has received 1,200 individual signatories and the support of 58 organisations, including clinicians, researchers, patient advocates, and members of the public. This reflects a clear and growing call for scientific rigour, respectful discourse, and appropriate representation of evidence in discussions of IACC (infection-associated chronic…
By Dr Elke Hausmann Audio available in Substack We are pleased to welcome the return of Dr Elke Hausmann as a guest writer. In this article she examines the controversial WIRED article which has sparked significant concern among patients and advocates for its portrayal of Long Covid, recovery narratives, and brain retraining approaches. What a headline. Ok, so generally journalists are not…
In this episode of the Pedantic Zebra Book Club, we’re joined by writer and cultural historian Dr Elinor Cleghorn to discuss her acclaimed book Unwell Women: A Journey Through Medicine and Myth in a Man-Made World. Together we explore the long history of medical misogyny, the cultural myths that shaped women’s healthcare, and the enduring legacy of dismissal, disbelief, and diagnostic inequality.…
How to breeze through a heat wave with ME & Long Covid Audio version on Substack 101 Quick PDF Download 101 Quick Image Save Longer Form Article Heat can significantly worsen symptoms for people with ME and Long Covid, particularly for those with a strong dysautonomia (autonomic dysfunction) presentation. And preparation can make all the difference. It can very much feel as comfortable as a goth…
It is ME Awareness Day, and the publication of our open letter to the Royal College of Psychiatrists sits within a long and well-documented history of contested approaches to ME within psychiatry and adjacent services.
In this special episode for Long Covid Awareness Day, Dr Rupert Higham, lecturer in Learning and Leadership from the Institute of Education at UCL speaks with Professor David Putrino, neuroscientist and rehabilitation specialist at the Icahn School of Medicine at Mount Sinai - and general legend!
