Hi, I’m Lorri. I’m dying from ALS, a fatal disease with no cure. I’ve been encouraged by so much to keep LIVING this life and stay focused on the positive. I created this podcast to find & share stories of inspiration in hopes of inspiring you. I'm offering an opportunity for you to continue the conversation after each episode. To join my Podcast Community Group on my Facebook page. There you can interact with guests, ask guestions, give suggestions about episode topics or simply encourage…
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Send us Fan Mail In this special roundtable episode, I welcome three fellow ALS podcasters for a conversation about the stories that stay with us, the people we’ll never forget, and why a microphone can become a lifeline. So happy to chat with Alison Burell-Stanley and David Stanley, hosts of I Lost My Person , who share how losing spouses to ALS eventually led them to friendship, love, and a…
Send us Fan Mail What happens when the life you’re just beginning suddenly changes forever? Hannah Broermann and Logan Chowning were newly married, building a home, and dreaming about the future when Hannah began experiencing symptoms that eventually led to a diagnosis of ALS at just 27 years old. In this episode, Hannah and Logan share the shock of diagnosis, the uncertainty that followed and how…
Send us Fan Mail Here, I’m joined by six members of Many Shades of ALS , a community team within I AM ALS , for a roundtable that breaks the stereotype of who gets ALS. We talk honestly about “ghosting” after diagnosis and why people disappear even when they care, then get specific about what real support looks like. We also name the moments that sting most: when people speak to our caregivers…
Send us Fan Mail Meet the inspiring duo behind the @unsteadyandready Instagram account, sharing life with ALS. Here, I sit down with Erin Taylor, diagnosed with ALS at 23, to hear what it’s like to build a life in your twenties while your body changes fast and your natural voice fades. Erin and her mom Lily show us how advocacy, humor, and everyday love can keep you feeling like a whole person…
Send us Fan Mail For six years, Sam Cunningham felt the subtle but persistent signs that something in his body wasn’t right—leg heaviness, twitching, and strength loss that didn’t add up. As an athlete, he knew his body, but getting answers proved to be a long and frustrating journey. In this episode, Sam shares what it’s like to finally receive an ALS diagnosis at 35, the emotional weight of…
Send us Fan Mail This episode is tender. In 2021, I interviewed a 28-year-old woman named Leah Stavenhagen. She had been diagnosed with ALS at 26. I remember thinking how young she was. How unfair it felt. But Leah didn’t shrink after her diagnosis. She built something incredible. What began as “In Her ALS Shoes” is now known as Her ALS Story — a sisterhood for women diagnosed with ALS under 35. A…
Send us Fan Mail Grammy-nominated, platinum-selling singer-songwriter Eric Paslay joins me to talk about about the night he drew my song idea out of a hat. Eric brought his unique songwriting experience, "Song In A Hat" to Hop On A Cure's "Harmony for Hope"" event and something magical happened there. My "Song In A Hat " idea was randomly drawn. This led to me joining musicians Eric Paslay,…
Send us Fan Mail In this deeply moving episode, I sit down with Salym Liufau , a 33-year-old mother of four living with ALS, whose grace and honesty have touched thousands online. Salym opens up about adapting to a body that’s changing while holding tight to joy, purpose, and presence. We talk about motherhood in the face of uncertainty, the traditions she’s building for her children, the legacy…
Send us Fan Mail In this second part of my chat with 33-year-old widow Melanie Lang, we talk about her & her husband Tyler’s biggest miracle, their daughter. Tyler only spent 6 weeks with his precious baby girl before he died of ALS at a young 33. Melanie’s perspective & big heart shines through as she talks about using their platform “Don’t Waste A Day” to help other families in Tyler’s memory.…
Send us Fan Mail I catch up with 33-year-old widow Melanie Lang to share how she and her husband Tyler faced ALS with relentless honesty, deep faith, and a simple motto that became their North Star: Don’t Waste A Day! If you’re navigating illness, grief, or the heavy unknown, this conversation offers a grounded way forward: focus on today, serve the people in front of you, and let purpose be…