New Data from Clene Showcases I AM ALS, ACT for ALS Success Story
New Survival Data on CNM-Au8 Highlight Progress in ALS Treatments
I AM ALS – ALS is Relentless. So Are We!
We know personally how devastating ALS can be. That’s why we’re going to put an end to it.
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Flag Submission Form 2027
Each May, I AM ALS transforms the National Mall in Washington, D.C. into a sea of six thousand gently waving blue flags — each one representing one of the approximately […]
Community Forum with the Board
Join Us: Community Forum with the Board August 3rd, Monday | 2:00 PM ET We’d love for you to join a community forum with our staff and volunteer leaders along […]
House of Representative Passes ACT for ALS Reauthorization
On July 22, 2026, the House of Representatives passed the ACT for ALS Reauthorization Act. Legislation championed by Reps. Quigley and Calvert will reauthorize ACT for ALS and with it, ALS research funding program
ALS Action Alerts On Your Phone
There’s no one way to create change. That’s why we’re launching text alerts: a simple way to stay involved in the movement to end ALS without checking your inbox or […]
Thank lawmakers for passing ACT for ALS!
We’re closer than ever, and your voice can get us there. The House and Senate have each passed their own version of ACT for ALS. Now they need to agree […]
How to Support Someone With ALS: A Complete Guide for Families and Friends
Lisa's path to diagnosis was long, exhausting, and complicated by the height of the COVID-19 pandemic. Access to an ACT for ALS-funded EAP offered her hope.
House Proposes Historic Doubling of ALS Research Funding
House Proposes Historic Doubling of ALS Research Funding Following Calls from I AM ALS & ALS Community Proposed increase to $80 million annually through the Department of Defense reflects growing […]
Ring Every Bell, Starring Eric Dane
After Long, Exhausting ALS Diagnosis Process, EAP Offers Hope
Lisa's path to diagnosis was long, exhausting, and complicated by the height of the COVID-19 pandemic. Access to an ACT for ALS-funded EAP offered her hope.