HCandU is a podcast dedicated to the metabolic disorder, homocystinuria. This podcast is meant to be a resource for anyone who has HCU or has been affected by HCU. Topics to be discussed on the show include patient stories, research updates, recipes, and interviews with experts in the field of homocystinuria. Whether you or someone you know were just diagnosed or have been a patient for years, we hope you find this podcast helpful!
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In the fifty fourth episode of HC&U, we interview Brittany Hunter. Brittany is mom to classical homocystinuria patient, Anniston. Brittany shares Anniston's story of her homocystinuria diagnosis through newborn screening and how their family has made the management of homocystinuria a normal part of their routine. During Lindsey's Low Pro Bitesss, we discuss low protein pasta salad. Please share…
HC&U: A Podcast about Homocystinuria and HCU Network America are proud to present a new monthly podcast series featuring quick, informational interviews with experts in the world of homocystinuria. In the fourth installment of HC&U Bite Sized, we talk to the Senior Director of the RareX Research Program with Global Genes, Dr. Zohreh Talebizadeh about data sharing through RareX. Please share the…
In the fifty second episode of HC&U, we interview Patrick Lynch. Patrick is a classical homocystinuria patient. He shares his story of his homocystinuria diagnosis at the age of 9 and some of the struggles he faced as a teenager in regards to treatment adherence. Patrick also talks about how he manages his treatment of homocystinuria and being physically active. During Lindsey's Low Pro Bitesss,…
Welcome to HC&U, the homocystinuria podcast sponsored by HCU Network America! We hope you enjoy this three part series, sponsored by Travere Therapeutics. The third and final installment is called Clinical Trials in Motion. Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org! Check out HCU Network America! Check out Travere Therapeutics ! HC&U…
Welcome to HC&U, the homocystinuria podcast sponsored by HCU Network America! We hope you enjoy this three part series, sponsored by Travere Therapeutics. The second installment is the Harmony Global Clinical Trials Live Q and A. Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org! Check out HCU Network America! Check out Travere Therapeutics…
Welcome to HC&U, the homocystinuria podcast sponsored by HCU Network America! We hope you enjoy this three part series, sponsored by Travere Therapeutics. The first installment is called Clinical Trials 101. Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org! Check out HCU Network America! Check out Travere Therapeutics ! HC&U on Facebook…
We hope you enjoy the 2026 World Homocystinuria Awareness Day panel hosted by Ben featuring Jacob, Amy, and Isaac! Thank you to our panel sponsor, Syntis Bio! Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org! Check out HCU Network America! Check out Syntis Bio ! HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HCU…
In the fifty second episode of HC&U, we interview Brandon Tornes. Brandon is the dad of Mason who has Cobalamin C. He shares an update on Mason's and his family's journey with Cobalamin C as well as some advice for people in a similar situation. During Lindsey's Low Pro Bitesss, we discuss Mom's fried sweet potatoes. Please share the podcast and give us a 5 star rating and review! Email us at…
HC&U: A Podcast about Homocystinuria and HCU Network America are proud to present a new monthly podcast series featuring quick, informational interviews with experts in the world of homocystinuria. In the third installment of HC&U Bite Sized, we talk to HCU Network America Research Coordinator and mom of cblG patient Grayson, Brittany Parke about her presentation for the Society of Inborn…
In the fifty first episode of HC&U, we interview Zamira Castaneda. Zamira is the mother of Luciano who has Cobalamin G. She shares her family's medical journey along with some struggles and triumphs of living with Cobalamin G. During Lindsey's Low Pro Bitesss, we discuss Mom's fried sweet potatoes. Please share the podcast and give us a 5 star rating and review! Email us at…
HC&U: A Podcast about Homocystinuria and HCU Network America are proud to present a new monthly podcast series featuring quick, informational interviews with experts in the world of homocystinuria. In the second installment of HC&U Bite Sized, we talk to Nicolo Betoni about his presentation at the American Academy of Neurology conference. Please share the podcast and give us a 5 star rating and…
HC&U: A Podcast about Homocystinuria and HCU Network America are proud to present a new monthly podcast series featuring quick, informational interviews with experts in the world of homocystinuria. In the first installment of HC&U Bite Sized, we talk to Kristen Skvorak about her presentation at ACMG. Please share the podcast and give us a 5 star rating and review! Email us at…
