Writing about raising a son with refractory epilepsy.
I was sitting in an AI users group meeting at work recently. We went around the room and people described what they had been using the tools for. It wasn t a technical crowd. These were people with domain knowledge and good instincts who had previously been blocked by a specific kind of gap. The gap [ ] The post The Execution Layer appeared first on epilepsy dad .
I got to the airport early even though I knew the flight was delayed. I had been tracking it since he left Arizona. Texts from him at the gate. Updates from his mom. A text when he boarded that landed differently than the others. He was on the plane, he was coming home. I had [ ] The post Complete appeared first on epilepsy dad .
The neurology appointment is coming up, so I went back through the footage. This is part of the routine. We have a camera in his room as part of how we monitor his seizures at night and into the morning. I check it most days, usually just the early hours, scanning for the telltale movement [ ] The post What the Camera Finds appeared first on epilepsy dad .
He comes home on Sunday. I ve been counting down in a way I didn t expect to. Not dramatically, just the quiet awareness of the days getting smaller. Six weeks is a long time. Longer than I thought it would feel. I know why he went. He needed time with his mom, and I wanted him [ ] The post Almost appeared first on epilepsy dad .
I ve been listening to a book called Mattering. One of the early chapters is about the weight that comes from someone depending on you, and what happens when that weight disappears. The author tells the story of a woman who cared for her elderly mother for years. When her mother passed, she didn t just grieve [ ] The post The Empty Basket appeared first on epilepsy dad .
I typed the last word sometime in the spring. I closed the laptop and sat there for a minute. That was it. Twelve years. Fifty-nine chapters. Done. I didn t know what to do next. This blog started in 2015 because I needed somewhere to put it. The appointments and the medications and the nights listening [ ] The post I Wrote a Thing appeared first on epilepsy dad .
I was at my desk when he walked in. He had something behind his back. He told me to pick a hand, which is something we ve done forever — the other person always swaps the item to the other hand at the last second, holds it out, says oh well. I stopped what I was [ ] The post Pick a Hand appeared first on epilepsy dad .
So much of my life runs on routine. On weekday mornings I wake up early without an alarm. I let the dogs out and feed them, then head to the basement to work out. After, I make coffee and go upstairs to write, the dogs settling into a chair or the couch in the office [ ] The post The Long Way appeared first on epilepsy dad .
I just dropped my son off at the airport. Six weeks. It s strange being here this way. Everyone else is with someone. They have carry-ons, food for their flights, snacks. Families traveling together. Business travelers with briefcases and laptops. Everyone has somewhere to be and someone to be with. We went to the special services [ ] The post The Walk Back appeared first on epilepsy dad .
The longest that I ve ever been apart from my son is about a week. When I was traveling for work, I would leave on Monday and return on Thursday or Friday. While I was gone, we would call or FaceTime, anything to stay connected. Once, for a trip to San Diego, he snuck a small [ ] The post The Shape of Things appeared first on epilepsy dad .