RSSAmplifier

Blog

e-Patient Dave

Power to the Patient!

epatientdave.comRSS feed ↗10 posts

Latest posts

Why I’m not attending the June 3 meeting

I was invited to attend a policy discussion at the White House complex tomorrow, June 3, 2025. The subject is important to me access to our health data, plus some items about publishing data about quality of healthcare and about patient safety. These are things I ve advocated on for years. But I decided I [ ]

HHS has ditched transparency on “grants, benefits, or contracts” rules. Watch out!

As the graph at right shows, the biggest part of the US budget is Health Human Services. And five weeks ago they announced they ll reduce public participation in their spending decisions: what they support and what they cut off. This is a desperate mistake for the public s interest, and thus for patients, because it s [ ]

The AI Revolution, Revisited: It’s Succeeding at Real Work

When The AI Revolution in Medicine came out in 2023, I called it the best book I’d seen on AI in healthcare, because it resonated deeply with realities I d heard in thousands of conversations at hundreds of conferences. Today we can say with confidence that co-authors Peter Lee, Carey Goldberg, and Zak Kohane correctly anticipated [ ]

“The AI Revolution in Medicine, Revisited”: new podcast series updating this great book, two years on. The intro is out.

I'll be a guest in a new five part podcast series on this book. Exciting! Hosted by Peter Lee, president of Microsoft Research and lead author of the book.

“Your Map to the Future”: learning to deal with disturbingly uncertain times

This is my first post in months, and isn t specific to healthcare. I m doing it for a couple of reasons. First, this is an important new book by one of the sharpest minds I ve ever known, and second, it s about a dangerous situation that s driving a lot of people nuts. The danger is real, and [ ]

Free kidney cancer patient information day from the hospital that saved me. Please share.

As long-time readers know, in 2007 I nearly died from a severe case of kidney cancer. One thing that saved me was being very well informed by information I got from an online patient community information that was valid but did not exist in the medical literature. (They re now at SmartPatients.) So my hospital, [ ]

Seeking end of life perspectives from many faiths

A friend in hospice seeks advice on end-of-life perspectives from many faiths. Can you help?

Governing wildfires: What we can learn about AI from our history with cars

An analogy came up last month that I think bears discussion, and I wonder what you think. Everyone knows we have to watch out for AI s dangers, but the same was true when cars were new. And electricity. And machinery. How do we learn to move forward to enjoy new power without horrible risks?? [ ]

Include patient users in co-creation of AI and related policy. The need is urgent! #PatientsUseAI

Patients are being overlooked as users of artificial intelligence, and we need to fix that. #PatientsUseAI

Return to Maastricht, site of my TED Talk! Join us.

If you can, please come to the Netherlands in May for this conference. It s a big deal for me in more ways than one: it s in Maastricht, the city where the European Union was formed in 1993 and the city where I gave my TED Talk in 2011. Thirteen years ago and boy has [ ]