Hypermobility and Ehlers-Danlos Syndrome: What I Wish Everyone Understood
Here’s what I wish patients, practitioners, family, and friends understood about hypermobility and EDS.
Party like it s 1899: References for survival when you re allergic to modern life. Severe and sensitive corn allergy, gluten free, soy free +30, MCAS, H-EDS, G6PD Deficiency.
Here’s what I wish patients, practitioners, family, and friends understood about hypermobility and EDS.
When you google corn allergy , the top links you get back seem to convey a picture of corn avoidance that is far less complicated than what I experience, and what the folks in my support groups and who contact me directly through my blog experience. Now, I m not trying to bum anybody out here, but Continue reading Clearing Up Some Misconceptions About Corn Allergy
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This blog is about corn allergy, but it s no secret by now that I don t just have a corn allergy. I also have a mast cell disorder, and that is likely the reason my corn reactions are so severe and sensitive. It is also the reason why I react to so many other things besides Continue reading Mast Cell Activation Syndrome
If you ve ever read my posts on ER Safety, Hospital Safety, or the Hidden Corn- Medical Supplies post, you probably know that blood transfusions contain corn derivatives. I ve known this a while and made plans for eventually having to have an emergency treatment that would require corn exposure in order to save my life. But Continue reading Hemolytic Anemia G6PD Deficiency: How I survived…
Over a year ago, someone commented on my post detailing the challenges of finding corn-free meat by asking why one would not become a vegetarian instead of going to all that trouble. My diet, and the diet of many people with corn allergy, is so limited that that would be a guarantee of malnutrition. I Continue reading Why is a Corn-Free Diet so Limited?
Help! I m Reacting to Water???! This is a message I ve gotten a few times, and I haven t had a very complete response to it to date because I haven t been able to solve the problem for myself. And now that I have it mostly solved, I still don t have any clear explanation for the phenomenon or Continue reading The Water Post
May is Ehlers-Danlos Syndrome Awareness month, and this is one of the rare diseases I am diagnosed with. So I m taking a moment to depart from the topic of corn allergy to give you some info about it. Ehlers-Danlos Syndrome (EDS) is a group of heritable connective tissue disorders. EDS causes weak or defective collagen, Continue reading Ehlers-Danlos Syndrome Awareness Month: My Life as a Zebra
Learn something from this post? Feel free to show your appreciation with a tip! The info on my blog is always free, so you are never obligated. But it is always appreciated. Updated 2/21/2017bl I ve written a bit about how to stay safe in emergency situations, but not about longer hospital stays and planned surgeries. Continue reading Hospital and Medical Safety With a Corn Allergy
I can only eat food from a few specific farmers so I have to put up what is growing when it s growing if I want to eat in the winter. You can learn about why this is by skimming through my Hidden Corn laundry list and reading some of my corn-tamination posts on individual foods. Continue reading What My Winter Prep Looks Like