Cerebral Palsy is a complex health condition that impacts each individual differently. As a result, finding information about what might help improve function, increase participation, and achieve health and lifestyle goals can be difficult. This podcast is a place for conversations with experts about issues related to cerebral palsy that affect health, fitness, function and participation. We will cover a range of topics including: treatments and therapies, nutrition, neuroplasticity, genetics,…
Live Last read · last published · next check
Saves to your Listen and Watch queue, to pick up on another day or another device.
Have you heard of Brain Computer Interface (BCI)? Have you wondered if this technology might help your child or even yourself achieve goals and unlock potential? The future is here! Join Jen for this episode with Dr. Adam Kirton, Professor of Pediatrics and Clinical Neurosciences; Pediatric Neurologist and Co-Founder of Possibility Neurotechnologies, as he explains what BCI is, how it works, who…
Orthopedic surgery can be a fact of life for those with cerebral palsy. Many children undergo multiple surgeries through their childhood and teenage years, especially those with more complex CP. In this episode I talk with Dr. Hank Chambers and Dr. Verena Schreiber about their recent publication outlining what parents and your child's medical team should do to prepare for orthopaedic surgery, to…
On this episode, Jen interviews Ginny Paleg, PT, DScPT to discuss her recent research surrounding Dynamic Movement Intervention. This therapy has gained popularity in recent years and is frequently recommended by therapists, but is the evidence to support its use? Ginny helps break this down as we explore what does and does not have evidence and why some of these "intensives" are so popular with…
In this special episode, Jen interviews Belinda Deramore Denver, PhD, OT while at the AACPDM annual meeting in New Orleans. Dr. Denver's work focuses on vision in children with Cerebral Palsy and she is the principal developer of the new Measure of Early Vision Use. Belinda's clinical and research interest lie in addressing the gaps in current assessment and intervention practices for children…
In this special episode, we highlight the upcoming AACPDM 2025 Conference in New Orleans , and we discuss the following with our guest, Dr. Theresa Sukal Moulton and fellow podcasters, Azucena Gardia, Dr. Kilby Mann and Dr. Tyler McDonald 1. General theme and vision behind this year's conference in New Orleans 2. New Orleans is the host city, and we can expect. 3. How the four-day program and the…
Jen and Nathalie discuss general preventive care, including vaccines for individuals with CP. We cover the what you should expect from your pediatrician or provider, ways to advocate for yourself or your loved one, and things you can do to make visits more comfortable. We also discuss vaccines, including how they work in the body and the controversies surrounding them.
In this episode, guest and CPF Senior VP of Strategic Partnerships and Advocacy, Cynthia Frisina, gives us a behind the scenes look at how Cerebral Palsy Awareness Day and month came to be and what exactly it means! She helps us understand the importance of advocacy and the exciting possibilities for cerebral palsy advocacy moving forward, with the help of parents, individuals with CP, and…
In this episode, guests Dr. Erica Caffrey and Dr. Sydnee Chavis provide their unique expertise and experience in dentistry and oral heathcare for individuals with Cerebral Palsy and other disabilities across the life span. Both are professors of dentistry who have a passion for advocacy, education and access to high quality dental care for those with disabilities. This podcast covers the topics of…
Jen and Nathalie discuss the ins and outs of research, including the different phases of research trials, types of research trials and questions to ask your therapists when they recommend a treatment or intervention.
Today we're talking about fitness and CP...why fitness is important, how we have incorporated fitness into our son's lives, how we have found gyms and personal trainers and what you should be asking your doctors or therapists so you can help your loved one get fit and stay fit from childhood on.
