Friends and family from the south of Europe have been sending us messages of spring sunshine, tales of twenty degrees celsius days. Françoise spotted two V shaped flocks of swans migrating northward towards us. Delphine sent photos of jonquils unfurling bright yellow flags.
This morning I saw grass growing in the field where the snow and melted. Imagine, the grass had been growing under the snow through the prisms of light. Soon swans and other migratory birds will be landing in these fields. The cacophony of spring is coming! Soon you will come home!
You say it seems hard to believe that you will be free of this hospital system, hard to to imagine having a life of free choice again. You say it seems like a dream.
Foot massage brought you so much relief after my days away. But once again the doctor warned us, your weight is still going down. She made a new offer today in attempt to encourage you to take in more food, she said that they can feed you some of the food I make, directly through the tube in your stomach. We had no idea this was even an option. What a thrilling thought! We could be rid of this highly processed bag food way sooner that expected, replace it entirely with nutritious homemade organic food.
I saw your stoma today after you’d had a shower. It looks different this time, a little folded over in the doctors efforts to bring the sides together quickly, but it seems to be healing well. I wonder if you could spray water from your blowhole, like a human whale? Your stoma is another little mouth, I could almost imagine it beginning to speak.
Thank you to everyone who has donated to our Build a House of Dreams for Patrick gofundme, you have absolutely blown us away with an ocean of generosity. All donations, both on and offline have now been added to the gofundme page, pooling an astonishing 409 383 SEK. You are supporting us beyond our wildest dreams, while making them a reality. Thanks to all of you, we can continue building our home and centre for A R T I S T S in R E S O N A N C E this spring, now with the help of a builder. This gives us great hope.
In case you are new to this diary, Letter to my Love with your Brain on Fire can be read as a prelude.
Your comments, likes and shares are so warmly appreciated, even if it takes a while to respond… I promise we will eventually!
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