While emptying the compost this morning, right at the bottom of the bucket I found the pumpkin seeds from last week’s soup. The seeds had begun sprouting, so I tucked one shooting seed in the pot indoors, to the side of the amaryllis bulb now in leaf. It’s a bit early to plant pumpkins just yet, but why not let this one grow.
When I came to you today, there were stories of other seeds that had slipped through the mixer in your smoothie and lodged themselves in them entrance to the PEG tube in your stomach. When the nurses had tried to deliver your smoothie by syringe, the stray linseeds got so stuck that they needed to cut off the tube install a new attachment. I felt terribly guilty to not have mixed your smoothie thoroughly enough, I’d made it in a rush. Thank goodness for your sturdy problem-solving nurse who was not phased at all. I’ll start soaking the seeds and nuts overnight from now on, so they are less likely to slip through the mixer whole. Hopefully this will solve the trouble.
We got a bit behind with your food today and I became worried about not making it to your calorie count, considering that your weight has been going down. I was met by incredibly diligent nurses who completely rescheduled your food routine to portion it out so it would work better for you, and then the good news came. They had weighed you and you’d started putting on weight! We’re on the upward curve now and things can only get better. With that wonderful news the tears of my morning evaporated. We have you close again to sixty kilos, ten kilos less than when you first came to hospital, though much of that was muscle that wasted away. We just need to make sure you have enough energy reserves for the healing process to continue.
We received next week’s schedule today and a copy for me too. It’s an incredibly detailed plan with a generous resting time scheduled after each meal. This feels like a dream. It’s something we’ve been asking and wishing for for months now - a structure that can support your recovery process, that can give you relief from brain fatigue. The generosity of spirit in this place is palpable. It’s still a lot of work for you with settling in, with getting to know so many new nurses and for them to get to know you but I do feel we have the best conditions for your healing here.
Thank you to everyone who has donated to our Build a House of Dreams for Patrick gofundme, you have absolutely blown us away with an ocean of generosity. All donations, both on and offline have now been added to the gofundme page, pooling an astonishing 409 383 SEK. You are supporting us beyond our wildest dreams, while making them a reality. Thanks to all of you, we can continue building our home and centre for A R T I S T S in R E S O N A N C E this spring, now with the help of a builder. This gives us great hope.
In case you are new to this diary, Letter to my Love with your Brain on Fire can be read as a prelude.
Your comments, likes and shares are so warmly appreciated, even if it takes a while to respond… I promise we will eventually!
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